Long Term Survival with AMLWhen I was 47 years old in 2004, my family and I received the grim news that I had advanced AML. The survival rate at the time was 15% to... By russp1 min readBookmark for later Reactions 0 reactions Comments4 comments
The ‘C’ WordI started by turning the chemo bottles this way and that before storing them in the highest shelf of the cabinet. Now they looked like any other medication with the... By Maria Valente3 min readBookmark for later Reactions 0 reactions Comments7 comments
The WaveI was diagnosed with multiple myeloma on February 21, 2019. As I sat there in the treatment room alone; for my oncologist/hematologist had just dropped this on me: I remember... By steviec2 min readBookmark for later Reactions 0 reactions Comments10 comments
Healing JourneySometimes a spiritual awakening requires the body and soul to be faced with situations that are so overwhelming that you have no choice than to open your heart and recognize... By michaellee13 min readBookmark for later Reactions 0 reactions Comments6 comments
Living Life Till the Blood is Used UpI've been praying and begging doctors and hospitals for help and diagnosis for working on 5 years now. It all started with a ripped loose collarbone at the sternum and... By vincent-wright1 min readBookmark for later Reactions 0 reactions Comments8 comments
Strokes & My Cancer: Essential ThrombocythemiaIn March of 2014, I had a stroke. Come to find out after an MRI I had had multiple strokes. Four months later on my stroke journey of doctor after... By laurim1 min readBookmark for later Reactions 0 reactions Comments14 comments
Polycythemia Vera (PV)I just found out last month I have PV Now I'm waiting for results from my bone marrow. Not sure how I feel...Confused, angry, scared? I have been oral chemotherapy... By ruth1 min readBookmark for later Reactions 0 reactions Comments12 comments
CLL/SLLLast May 2018, I was diagnosed with CLL/SLL. It's been a hard road trying to understand what I really have. Throughout this time, I was in the watchful waiting stage... By therese1 min readBookmark for later Reactions 0 reactions Comments4 comments
Living with CLLI feel tired most days. No motivation. When I eat or drink sometimes do not feel well. Thus a nap is usually in order. I've been healthy all my 75... By 22222dad1 min readBookmark for later Reactions 0 reactions Comments1 comments
Living with my Star Trek Illness: Understanding Myelodysplastic SyndromesJune 2, 2017, I learned that I have myelodysplastic syndromes (MDS). Doesn't that sound like something written for a Star Trek episode? Maybe something Mr. Spock would acquire? Myelo is... By Connie Connely5 min readBookmark for later Reactions 0 reactions Comments17 comments
I Wore RedI wore red that day. I wore red and looked good! Damn good! Okay…that may be a stretch…I wore an old red t-shirt, slightly loose around the neck so the... By Deb Wesloh3 min readBookmark for later Reactions 0 reactions Comments7 comments
AML: The Year in This Crazy LifeMy name is Becky, and I was this healthy invincible woman who just by chance went to my primary physician one year ago. Feeling good, I just happened to mention... By beckyc1 min readBookmark for later Reactions 0 reactions Comments3 comments
Bone Marrow Transplant Result AnxietyI am 20 months post bone marrow transplant for AML. My last visit at the end of January showed all positive results. I return to the doctor at the beginning... By ddaily1 min readBookmark for later Reactions 0 reactions Comments4 comments
Amyloidosis and Multiple MyelomaI hadn’t felt good for months. Kept telling the doctor that something was not right, then my legs started to swell. She sent me to a kidney doctor who sent... By nuttinet1 min readBookmark for later Reactions 0 reactions Comments6 comments
Hey, So We Got Multiple MyelomaI thought I would throw in my one piece of advice for MM patients. When I was diagnosed, I moped and cried for a week. Then I said, "To hell... By bklynite19531 min readBookmark for later Reactions 0 reactions Comments5 comments
Essential Thrombocythemia and Lymphoma-Large B CellI was diagnosed with Essential Thrombocytemia in July of 2017 and started on treatment shortly after that. My biggest complaint was fatigue but I continued to work my parttime job... By cocopuff8161 min readBookmark for later Reactions 0 reactions Comments8 comments
My Crazy Roller Coaster Ride with Multiple MyelomaPrior to 2012, I was living the life I loved. I was the mother of two beautiful children; my son Matthew was 22. He was building a life of his... By Cherie Rineker4 min readBookmark for later Reactions 0 reactions Comments7 comments
Even With Low Energy, It's Worth Getting upIt's been over 5 years since my diagnosis and my cancer is still going, but slowing down. I have an enlarged spleen and liver. I get up and get dressed... By chuck1 min readBookmark for later Reactions 0 reactions Comments6 comments
Learning I have Chronic Lymphocytic Leukemia (CLL)In September, I went in for my annual mammogram. All was good with it but the lymph nodes in my armpit were enlarged. Blood work showed my WBC was really... By lred551 min readBookmark for later Reactions 0 reactions Comments3 comments
Went in for Sciatic Nerve Pain, Came Out with Multiple MyelomaWow, where to start? Well, I can say I moped and cried for a week. After that f**k it. Must be my Brooklyn upbringing. I believe getting diagnosed with multiple... By bklynite19532 min readBookmark for later Reactions 0 reactions Comments15 comments