Stories

I have chronic lymphocytic leukemia. I was walking around with a knot on my neck, didn't feel very good, and I was always weak. I went to the doctor (5/18)...

I was feeling really lousy and I did not know why. I thought it could be my thyroid or the stress from my job or taking care of my family...

Sitting in my hospital room, infusing chemotherapy, you have to wonder how my life ended up like this. It all started in 2018 with a cough and cold that would...

June 2015 I was diagnosed with AL Amyloidosis. I was 55 years old. Amyloidosis is a plasma cell disorder-Blood Cancer. Symptoms began with severe neuropathy pain in my left foot...

Between the need too rest due to pain, or from overwhelming fatigue I am not able to get as much done as I used to. while it bothers me it...

I was 45 years old and had a baby that was 2 years old and 3 other children, when a routine blood test was suspect that I might have CLL...

Aunt Flo, Bloody Mary, and The Blob. If you are of the female persuasion you know what I am talking about. I am specifically writing for you, my soul sisters!...

I thought I was losing it. Going absolutely bonkers. There was this pain and it was sometimes sharp, sometimes dull and achy. Sometimes it disappeared altogether. Other times it had...

Life with blood cancer is painful. Struggling, doubting, and uncertainties. Self-isolation is my new norm. Foggy brain and spinal pain is my best friend. My good day is when I...

There was no taste to food anymore. I chewed slowly trying to find it. The texture was revolting without taste. I had already lost 4 dress sizes in three months...

I used to have long thick hair; I mean really thick hair, but today I am bald. I’m bald because I’m in treatment for leukemia. As I was admitted to...

2020, what a year already! In the middle of January, I was diagnosed with Waldrenstrom, a blood cancer. My world flipped upside down. While in the Columbus hospital my mind...

In 2013, I had a routine blood test, for cholesterol screening. My WBC was slightly elevated, so I was re-tested. I was subsequently diagnosed with CLL and have been seeing...

I am a former researcher, now a patient lawyer and I work in the pharma space. Even though I have more scientific background than the average person, it was difficult...

I was diagnosed with stage 3 lymphoma back in November of 2010 at the age of 29 years old. I sort of breezed through ABVD and radiation all while planning...

Mine is not a blood cancer, per se, but it’s generated in the same place, the bone marrow. Just like multiple myeloma. It is currently treated with 120 mg, monthly...

Eleanor Roosevelt, wife of our 32nd president said, "No one can make you feel inferior without your consent." I wonder if Eleanor ever attended any of her high school reunions...

I was diagnosed May 16 1019 with CLL and I am currently on Imbruvica. I’ve known something was wrong with me but all the doctors blamed it on my back...

My husband has multiple myeloma stage 3. The current treatment; chemo immunotherapy followed by high doses of dexamethasone. Unfortunately, the dexamethasone causes him to be jittery, grumpy and cross. I...

I was diagnosed with acute promyelocytic leukemia at the age of 26 in 2006. I'm in remission now and I've been in remission since 2008...