Facing Myelofibrosis: Can I Get a Light"Can I get a light, please?" was all I could say. My heart was pounding out of my chest from anxiety and fear, disguised as anger. How? Why? My mind...Reactions0reactionsComments0 comments
My Cancer JourneyAt the end of 2022, my sister was diagnosed with bladder cancer. I made the comment that sisters never battle alone and told her that I would be there to...Reactions0reactionsComments0 comments
Trusting Your Care Team: A Blood Cancer Patient's FrustrationMy worst fear is trusting doctors and care team. I wasn't scheduled to see my oncologist this month, and from the looks of it, no one checked my blood count...Reactions0reactionsComments0 comments
Chronic Lymphoma Leukemia (the second cancer)I was told my whole adult life I had dense breasts. I really didn’t have a chest before kids. I breastfed both my kids. At 37 years old, I saw...Reactions0reactionsComments0 comments
Multiple Myeloma DiagnosisSummer of 2023, I started having extreme back pain and hip pain. I bent over in my kitchen to pick something up, and I couldn't get back up again. I...Reactions0reactionsComments0 comments
CLLMy journey started in May of 2019. Through blood tests, my PCP suspected blood cancer. A BMB showed 70% affected, and I started treatment with my spleen enlarged at 21...Reactions0reactionsComments0 comments
UncertaintyI was feeling very tired and weak. I’d sleep so much every day, and I had bruises on my shoulders and was out of breath for no reason. Then one...Reactions0reactionsComments3 comments
My road to recoveryMy name is Anna, and I was diagnosed with stage four non-Hodgkin’s lymphoma, double cell, in November 2022. I underwent six rounds of R-CHOP and two bone marrow biopsies. I...Reactions0reactionsComments3 comments
Still hereI have PV and ET with the JAK2 mutation. My blood work has been really low, but my hematocrit has started to rise again. It's getting close to 45. It...Reactions0reactionsComments0 comments
CLL you picked the wrong personI had a sore throat during COVID. Couldn't see many doctors in person back then. My ENT did test after test, and I finally said I'd know if I'd had...Reactions0reactionsComments0 comments
CMLHi, I was diagnosed with CML December of 23! What a shock it was when my doctor told me! Never thought I would be in the situation that I am...Reactions0reactionsComments0 comments
Newly Diagnosed with Polycythemia VeraLast month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had a JAK2 mutation, indicating I have PV and...Reactions0reactionsComments3 comments
Rare Blood CancerI have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a rare blood cancer. I would like to find...Reactions0reactionsComments1 comments
Diagnosed with CMML and Sent to a RheumatologistI was diagnosed with CMML 6 mo. Ago. I was feeling OK till about 4 to 6 weeks ago, when I started feeling bone pain. The oncologist sent me to...Reactions0reactionsComments1 comments
Living with NHL of the Central Nervous SystemMy name is Andrew. I am diagnosed with NHL of the Central Nervous System. I have been in treatment for 5 years now. My advice is to live one day...Reactions0reactionsComments0 comments
Cancer- Not Once, but TwiceIn March of 2013 I was diagnosed with thyroid cancer, but not just one but two types of cancer- Follicular and Papillary Carcinoma. I was 39 years old. I had...Reactions0reactionsComments3 comments
March 2021 diagnosisMy story started in March 2021 when my previous blood test showed mostly red and critical results. I was stunned but not surprised as I had been saying for 1-1/2...Reactions0reactionsComments0 comments
My sonOn July 9th, my 27-year-old son was diagnosed with Burkitt's Lymphoma. As a mom, I feel as if I've failed to protect him. I know it's not my fault, but...Reactions0reactionsComments0 comments
Kathleen HawkinsI was diagnosed with Multiple Myeloma 3/18. My primary physician noticed that my blood work was out of order. We were checking my blood sugar regularly. My journey with Multiple...Reactions0reactionsComments0 comments
It’s Time To BloomMy story begins in late November of 2016. I had a bladder infection that became antibiotic-resistant and traveled to my kidneys. My amazing OBGYN, who has since retired, found some...Reactions0reactionsComments9 comments