Undiagnosed until I was 28

When I was 16, I had a stroke. I was on birth control to regulate some very painful and heavy periods, and the birth control caused the stroke. The doctors ruled out a bunch of things but never thought of Polycythemia Vera, until I was having 3 month long periods for unknown reasons. My doctors did some more blood tests and connected everything together. I dont have the Jak2 mutation, and I lost insurance so I haven't gone back for at least 8 years now for anymore testing.