Mycosis fungoidesI was diagnosed in the late 1990s and my treatments have always been geared to combat the bad skin conditions. I once had on about 25% of my body covered...Reactions0reactionsComments0 comments
Who do you tell?I am diagnosed with Leukemia and my life is in shambles. What do I do? What treatment? What will treatment do to me? Will I be able to support my...Reactions0reactionsComments3 comments
Not the way I expectedIn July of 2020 I was in the emergency room with a mental health issue and because it was during the pandemic I was sitting on a gurney in the...Reactions0reactionsComments0 comments
From Kidney Stones to a Cancer DiagnosisMy story—or journey, as I prefer to call it—began in December 2023. I was having severe pain in my right kidney area, which led me to the emergency room for...Reactions0reactionsComments2 comments
Facing Myelofibrosis: Can I Get a Light"Can I get a light, please?" was all I could say. My heart was pounding out of my chest from anxiety and fear, disguised as anger. How? Why? My mind...Reactions0reactionsComments0 comments
My Cancer JourneyAt the end of 2022, my sister was diagnosed with bladder cancer. I made the comment that sisters never battle alone and told her that I would be there to...Reactions0reactionsComments1 comments
Trusting Your Care Team: A Blood Cancer Patient's FrustrationMy worst fear is trusting doctors and care team. I wasn't scheduled to see my oncologist this month, and from the looks of it, no one checked my blood count...Reactions0reactionsComments0 comments
Chronic Lymphoma Leukemia (the second cancer)I was told my whole adult life I had dense breasts. I really didn’t have a chest before kids. I breastfed both my kids. At 37 years old, I saw...Reactions0reactionsComments0 comments
Multiple Myeloma DiagnosisSummer of 2023, I started having extreme back pain and hip pain. I bent over in my kitchen to pick something up, and I couldn't get back up again. I...Reactions0reactionsComments0 comments
CLLMy journey started in May of 2019. Through blood tests, my PCP suspected blood cancer. A BMB showed 70% affected, and I started treatment with my spleen enlarged at 21...Reactions0reactionsComments1 comments
UncertaintyI was feeling very tired and weak. I’d sleep so much every day, and I had bruises on my shoulders and was out of breath for no reason. Then one...Reactions0reactionsComments4 comments
My road to recoveryMy name is Anna, and I was diagnosed with stage four non-Hodgkin’s lymphoma, double cell, in November 2022. I underwent six rounds of R-CHOP and two bone marrow biopsies. I...Reactions0reactionsComments3 comments
Still hereI have PV and ET with the JAK2 mutation. My blood work has been really low, but my hematocrit has started to rise again. It's getting close to 45. It...Reactions0reactionsComments0 comments
CLL you picked the wrong personI had a sore throat during COVID. Couldn't see many doctors in person back then. My ENT did test after test, and I finally said I'd know if I'd had...Reactions0reactionsComments0 comments
CMLHi, I was diagnosed with CML December of 23! What a shock it was when my doctor told me! Never thought I would be in the situation that I am...Reactions0reactionsComments0 comments
Newly Diagnosed with Polycythemia VeraLast month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had a JAK2 mutation, indicating I have PV and...Reactions0reactionsComments3 comments
Rare Blood CancerI have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a rare blood cancer. I would like to find...Reactions0reactionsComments1 comments
Diagnosed with CMML and Sent to a RheumatologistI was diagnosed with CMML 6 mo. Ago. I was feeling OK till about 4 to 6 weeks ago, when I started feeling bone pain. The oncologist sent me to...Reactions0reactionsComments1 comments
Living with NHL of the Central Nervous SystemMy name is Andrew. I am diagnosed with NHL of the Central Nervous System. I have been in treatment for 5 years now. My advice is to live one day...Reactions0reactionsComments0 comments
Cancer- Not Once, but TwiceIn March of 2013 I was diagnosed with thyroid cancer, but not just one but two types of cancer- Follicular and Papillary Carcinoma. I was 39 years old. I had...Reactions0reactionsComments4 comments