My life with NLPHLI was originally diagnosed with nodular lymphocyte predominant Hodgkin’s lymphoma in 2022. I have never personally met anyone else who has this...reactionscomments
CMLHey all! I was diagnosed in 2023 purely by accident via kidney stones, which required having a nephrostomy bag attached to my...reactions1comment
Undiagnosed until I was 28When I was 16, I had a stroke. I was on birth control to regulate some very painful and heavy periods, and...reactionscomments
Diagnosed with Lymphatic cancer72 years old and just before Christmas my APRN sent me to a surgeon about a lump on my side done my...reactionscomments
26 Years with Essential Thrombocythemia (ET): From “Disorder” to DiscoveryMay 24th marks 26 years since I heard the words that would quietly change my life forever. Back then, they didn’t call...reactionscomments
Essential Thrombosis: What a wild rideI was diagnosed at 42 yesterday old. My parents passed away and just had my second child. The intensity of the moment...my...reactionscomments
My Cancer Journey: The Pain of Being UnseenWhen I first saw this question, it stirred up a lot of anger and pain from my cancer journey. I’ve been blessed...reactions2comments
It's Not Contagious, But It Changed Everything!Over two decades ago when I was first diagnosed with essential thrombocythemia (ET)—a rare chronic blood cancer—I braced myself for many things:...reactions1comment
Bcel LymphomaI was diagnosed about 6 years ago took about the 6 years to recover. Now it's back again . I'm not a...reactionscomments
Multiple myelomaDiagnosed with multiple myeloma in 2008. Took revlemid pills and had a stem cell transplant using my own stem cells. This was...reactionscomments
Self-DoubtSelf-doubt arrived quietly, without knocking, the day I was told, “You have a chronic blood cancer.” Essential Thrombocythemia—three words I had never...reactions4comments
Have You Been “Ghosted “ For Having Cancer ?There is no cure for it, you can’t take meds for it, you have no control over it.It’s called being "ghosted."What is...reactionscomments
Seeking a Second Opinion with Multiple MyelomaLast year I had a stroke in July. The hospital I was at couldn't find anything that caused it, so they blamed...reactions10comments
Went in for Sciatic Nerve Pain, Came Out with Multiple MyelomaWow, where to start? Well, I can say I moped and cried for a week. After that f**k it. Must be my...reactions15comments
Multiple MyelomaI'm 58 yrs old and 2 yrs ago I was diagnosed with multiple myeloma and stage 4 CKD. Since then I had...reactions2comments
Essential Thrombocythemia, MPNI was told that since I had a high platelet count, I would be perfect to be a platelet donor. I donated...reactions4comments
Surviving CML: Diagnosis, Advocacy, and Triumph over Health System ChallengesNext month will be a year since my diagnosis of CML. It was found accidentally, which was shocking since I had no...reactions3comments
Hope Through Treatment for CMLI was diagnosed with CML in 2014. I was devastated, as I had already been fighting MS. By the grace of whatever...reactions1comment
Multiple Myeloma is Not a Death Sentence!Multiple myeloma is not a death sentence! I was diagnosed in December 2015. Have been through a multitude of tests and treatments...reactions5comments
The ‘C’ WordI started by turning the chemo bottles this way and that before storing them in the highest shelf of the cabinet. Now...reactions7comments
