Stories

Disclaimer: What follows is just what has worked so well for me that it has taken me from essentially being bed-ridden for the better part of nine weeks (including four...

I'm in my 3rd year of stage 3 CLL. My husband died of lung cancer the year before I was diagnosed. Having seen what he went thru I decided to...

Now I need to tell you that Lucy is still mean. Yes, the targeted therapy helps, and I feel good. But my arms and hands get black and blue bruises...

Let’s talk about blood donations for a minute. First, thank you if you have ever donated blood and to those of you who are multiple-time donors, a huge THANK YOU...

That visit was soon followed by a hematologist/oncologist consultation because he specialized in dealing with folks who live with Lucy or one of her cousins. He explained that I was...

By Linda Gainey Smock Lucy is a mean girl. Oh, I know, not all girls named Lucy are mean. In fact, I have a friend named Lucy who is one...

I was diagnosed with Polycythemia Vera by my general practitioner, essential thrombocythemia by my hematologist and Myeloproliferative disorder by my oncologist take your pick. I was handling the diagnosis ok...

When diagnosed with stage 3 myeloma in 1992, an oncologist gave him 3 years to live. Jim asked more questions that led to a new oncologist & hospital where he had...

My husband was diagnosed with blood cancer over ten years ago. They did all the blood tests, and bone marrow tests. It was narrowed down to either ET or PCV...

I'm 58 yrs old and 2 yrs ago I was diagnosed with multiple myeloma and stage 4 CKD. Since then I had stem cell transplant and I am in remission...

For the past year and a half I felt so weak and fatigued. I had just moved down to a more so part of Arizona. I knew no one. My...

I am in remission for CLL and was doing ok, except for the fatigue. After retiring in 2017, I thought I had the world in my hand. CLL is behind...

I kept going to the doctor's office and complaining of a headache, fatigue, itching, and just general malaise. The PA would have me go to the lab and say there...

I didn’t think of it as an excuse, it’s my new reality. I’m grateful for 10yrs in remission of Stage 4 Hodgkin Lymphoma. There are just some things I can...

Having both CLL and NHL my wife has named the "Chemo fog" effect to Cinderella effect. Sometimes in the afternoon, I get really foggy. Yesterday we were shopping for groceries...

I’m Nathan, I'm 47 years of age, and I was diagnosed with polycythemia vera in 2020, 2 years ago. I live in Sydney, Australia. I was in my prime in...

Diagnosed with non-hodgkin's lymphoma back in 2003. The first treatment was in 2005. I've had 4 maybe 5 treatments in all. I recently had another CT scan and I have...

I was diagnosed with Jak-2 ET in August 2016. I was told that I was high risk and had to start chemotherapy medication immediately. I was told that I had...

I was diagnosed with multiple myeloma bone marrow cancer last year in July. I go to chemo twice a week. I'm in remission right now I also suffer from neuropathy...

Done with the chemo and all the Mg. of pills. I learned I am not Super Man. I have had bouts that far exceed anything I have ever been through...