My Attempt To Pampering MyselfSo, long story short, I was diagnosed with CML (chronic myeloid leukemia) in the fall of 2023. Since then, I have been on, I forget how many, chemo meds. They...reactionscomments
Living with CLLI was just diagnosed last May. However I have been anemic for years and have had enlarged lymph nodes on my mammograms for years. (Not to mention labs out of...reactionscomments
My Unsuccessful Fight Against MDSI was having frequent infections, and my pulmonologist saw that my blood counts were going down, suggesting me to see a hematologist. I consulted him and after my bone marrow...reactionscomments
Mycosis fungoidesI was diagnosed in the late 1990s and my treatments have always been geared to combat the bad skin conditions. I once had on about 25% of my body covered...reactionscomments
Who do you tell?I am diagnosed with Leukemia and my life is in shambles. What do I do? What treatment? What will treatment do to me? Will I be able to support my...reactions3comments
Not the way I expectedIn July of 2020 I was in the emergency room with a mental health issue and because it was during the pandemic I was sitting on a gurney in the...reactionscomments
From Kidney Stones to a Cancer DiagnosisMy story—or journey, as I prefer to call it—began in December 2023. I was having severe pain in my right kidney area, which led me to the emergency room for...reactions2comments
Facing Myelofibrosis: Can I Get a Light"Can I get a light, please?" was all I could say. My heart was pounding out of my chest from anxiety and fear, disguised as anger. How? Why? My mind...reactionscomments
My Cancer JourneyAt the end of 2022, my sister was diagnosed with bladder cancer. I made the comment that sisters never battle alone and told her that I would be there to...reactions1comment
Trusting Your Care Team: A Blood Cancer Patient's FrustrationMy worst fear is trusting doctors and care team. I wasn't scheduled to see my oncologist this month, and from the looks of it, no one checked my blood count...reactionscomments
Chronic Lymphoma Leukemia (the second cancer)I was told my whole adult life I had dense breasts. I really didn’t have a chest before kids. I breastfed both my kids. At 37 years old, I saw...reactionscomments
Multiple Myeloma DiagnosisSummer of 2023, I started having extreme back pain and hip pain. I bent over in my kitchen to pick something up, and I couldn't get back up again. I...reactionscomments
CLLMy journey started in May of 2019. Through blood tests, my PCP suspected blood cancer. A BMB showed 70% affected, and I started treatment with my spleen enlarged at 21...reactions1comment
UncertaintyI was feeling very tired and weak. I’d sleep so much every day, and I had bruises on my shoulders and was out of breath for no reason. Then one...reactions4comments
My road to recoveryMy name is Anna, and I was diagnosed with stage four non-Hodgkin’s lymphoma, double cell, in November 2022. I underwent six rounds of R-CHOP and two bone marrow biopsies. I...reactions3comments
Still hereI have PV and ET with the JAK2 mutation. My blood work has been really low, but my hematocrit has started to rise again. It's getting close to 45. It...reactionscomments
CLL you picked the wrong personI had a sore throat during COVID. Couldn't see many doctors in person back then. My ENT did test after test, and I finally said I'd know if I'd had...reactionscomments
CMLHi, I was diagnosed with CML December of 23! What a shock it was when my doctor told me! Never thought I would be in the situation that I am...reactionscomments
Newly Diagnosed with Polycythemia VeraLast month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had a JAK2 mutation, indicating I have PV and...reactions3comments
Rare Blood CancerI have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a rare blood cancer. I would like to find...reactions1comment
