Living With Lucy Part 4Now I need to tell you that Lucy is still mean. Yes, the targeted therapy helps, and I feel good. But my arms and hands get black and blue bruises...Reactions0reactionsComments3 comments
Living with Lucy Part 3Let’s talk about blood donations for a minute. First, thank you if you have ever donated blood and to those of you who are multiple-time donors, a huge THANK YOU...Reactions0reactionsComments0 comments
Living with Lucy Part 2That visit was soon followed by a hematologist/oncologist consultation because he specialized in dealing with folks who live with Lucy or one of her cousins. He explained that I was...Reactions0reactionsComments0 comments
Living with Lucy Part 1By Linda Gainey Smock Lucy is a mean girl. Oh, I know, not all girls named Lucy are mean. In fact, I have a friend named Lucy who is one...Reactions0reactionsComments0 comments
MPN DiagnosisI was diagnosed with Polycythemia Vera by my general practitioner, essential thrombocythemia by my hematologist and Myeloproliferative disorder by my oncologist take your pick. I was handling the diagnosis ok...Reactions0reactionsComments0 comments
Surviving Multiple Myeloma Since 1992When diagnosed with stage 3 myeloma in 1992, an oncologist gave him 3 years to live. Jim asked more questions that led to a new oncologist & hospital where he had...Reactions0reactionsComments0 comments
ET? PCV?My husband was diagnosed with blood cancer over ten years ago. They did all the blood tests, and bone marrow tests. It was narrowed down to either ET or PCV...Reactions0reactionsComments3 comments
Multiple MyelomaI'm 58 yrs old and 2 yrs ago I was diagnosed with multiple myeloma and stage 4 CKD. Since then I had stem cell transplant and I am in remission...Reactions0reactionsComments2 comments
So?For the past year and a half I felt so weak and fatigued. I had just moved down to a more so part of Arizona. I knew no one. My...Reactions0reactionsComments2 comments
Fatigue and More Fatigue!I am in remission for CLL and was doing ok, except for the fatigue. After retiring in 2017, I thought I had the world in my hand. CLL is behind...Reactions0reactionsComments2 comments
PolycythemiaI kept going to the doctor's office and complaining of a headache, fatigue, itching, and just general malaise. The PA would have me go to the lab and say there...Reactions0reactionsComments0 comments
Some Things I Can No Longer DoI didn’t think of it as an excuse, it’s my new reality. I’m grateful for 10yrs in remission of Stage 4 Hodgkin Lymphoma. There are just some things I can...Reactions0reactionsComments1 comments
Cinderalla EffectHaving both CLL and NHL my wife has named the "Chemo fog" effect to Cinderella effect. Sometimes in the afternoon, I get really foggy. Yesterday we were shopping for groceries...Reactions0reactionsComments9 comments
My Diagnosis and Living with Polycythemia VeraI’m Nathan, I'm 47 years of age, and I was diagnosed with polycythemia vera in 2020, 2 years ago. I live in Sydney, Australia. I was in my prime in...Reactions0reactionsComments7 comments
About MeDiagnosed with non-hodgkin's lymphoma back in 2003. The first treatment was in 2005. I've had 4 maybe 5 treatments in all. I recently had another CT scan and I have...Reactions0reactionsComments17 comments
Living with MyelofibrosisI was diagnosed with Jak-2 ET in August 2016. I was told that I was high risk and had to start chemotherapy medication immediately. I was told that I had...Reactions0reactionsComments3 comments
Diagnosed with Multiple MyelomaI was diagnosed with multiple myeloma bone marrow cancer last year in July. I go to chemo twice a week. I'm in remission right now I also suffer from neuropathy...Reactions0reactionsComments4 comments
Not So SmartDone with the chemo and all the Mg. of pills. I learned I am not Super Man. I have had bouts that far exceed anything I have ever been through...Reactions0reactionsComments1 comments
Is This Real?At this moment I cannot even think of a title to put down for my story. It’s been such a whirlwind. My story starts off with having Covid in March...Reactions0reactionsComments2 comments
Living with Multiple MyelomaIn 2016, started having some health issues. After numerous tests, including a fat pad biopsy, a kidney biopsy, and a bone marrow biopsy I was told I had Multiple Myeloma...Reactions0reactionsComments1 comments