Who do you tell?I am diagnosed with Leukemia and my life is in shambles. What do I do? What treatment? What will treatment do to...reactions3comments
Mycosis fungoidesI was diagnosed in the late 1990s and my treatments have always been geared to combat the bad skin conditions. I once...reactionscomments
Not the way I expectedIn July of 2020 I was in the emergency room with a mental health issue and because it was during the pandemic...reactionscomments
From Kidney Stones to a Cancer DiagnosisMy story—or journey, as I prefer to call it—began in December 2023. I was having severe pain in my right kidney area...reactions2comments
My Blood Cancer Story: Polycythemia Vera (PV)Aloha, my name is Maka. I am a 64 year old female who was diagnosed with PV in April 2020, just when...reactions1comment
CMLHi, I was diagnosed with CML December of 23! What a shock it was when my doctor told me! Never thought I...reactionscomments
Diagnosed with CMML and Sent to a RheumatologistI was diagnosed with CMML 6 mo. Ago. I was feeling OK till about 4 to 6 weeks ago, when I started...reactions1comment
Trusting Your Care Team: A Blood Cancer Patient's FrustrationMy worst fear is trusting doctors and care team. I wasn't scheduled to see my oncologist this month, and from the looks...reactionscomments
Facing Myelofibrosis: Can I Get a Light"Can I get a light, please?" was all I could say. My heart was pounding out of my chest from anxiety and...reactionscomments
My Cancer JourneyAt the end of 2022, my sister was diagnosed with bladder cancer. I made the comment that sisters never battle alone and...reactions1comment
Chronic Lymphoma Leukemia (the second cancer)I was told my whole adult life I had dense breasts. I really didn’t have a chest before kids. I breastfed both...reactionscomments
Multiple Myeloma DiagnosisSummer of 2023, I started having extreme back pain and hip pain. I bent over in my kitchen to pick something up...reactionscomments
CLLMy journey started in May of 2019. Through blood tests, my PCP suspected blood cancer. A BMB showed 70% affected, and I...reactions1comment
UncertaintyI was feeling very tired and weak. I’d sleep so much every day, and I had bruises on my shoulders and was...reactions4comments
My road to recoveryMy name is Anna, and I was diagnosed with stage four non-Hodgkin’s lymphoma, double cell, in November 2022. I underwent six rounds...reactions3comments
Still hereI have PV and ET with the JAK2 mutation. My blood work has been really low, but my hematocrit has started to...reactionscomments
CLL you picked the wrong personI had a sore throat during COVID. Couldn't see many doctors in person back then. My ENT did test after test, and...reactionscomments
Newly Diagnosed with Polycythemia VeraLast month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had...reactions3comments
Rare Blood CancerI have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a...reactions1comment
Living with NHL of the Central Nervous SystemMy name is Andrew. I am diagnosed with NHL of the Central Nervous System. I have been in treatment for 5 years...reactions1comment
