CLL you picked the wrong personI had a sore throat during COVID. Couldn't see many doctors in person back then. My ENT did test after test, and I finally said I'd know if I'd had...reactionscomments
CMLHi, I was diagnosed with CML December of 23! What a shock it was when my doctor told me! Never thought I would be in the situation that I am...reactionscomments
Newly Diagnosed with Polycythemia VeraLast month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had a JAK2 mutation, indicating I have PV and...reactions3comments
Rare Blood CancerI have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a rare blood cancer. I would like to find...reactions1comment
Diagnosed with CMML and Sent to a RheumatologistI was diagnosed with CMML 6 mo. Ago. I was feeling OK till about 4 to 6 weeks ago, when I started feeling bone pain. The oncologist sent me to...reactions1comment
Living with NHL of the Central Nervous SystemMy name is Andrew. I am diagnosed with NHL of the Central Nervous System. I have been in treatment for 5 years now. My advice is to live one day...reactions1comment
Cancer- Not Once, but TwiceIn March of 2013 I was diagnosed with thyroid cancer, but not just one but two types of cancer- Follicular and Papillary Carcinoma. I was 39 years old. I had...reactions4comments
March 2021 diagnosisMy story started in March 2021 when my previous blood test showed mostly red and critical results. I was stunned but not surprised as I had been saying for 1-1/2...reactionscomments
My sonOn July 9th, my 27-year-old son was diagnosed with Burkitt's Lymphoma. As a mom, I feel as if I've failed to protect him. I know it's not my fault, but...reactions1comment
Kathleen HawkinsI was diagnosed with Multiple Myeloma 3/18. My primary physician noticed that my blood work was out of order. We were checking my blood sugar regularly. My journey with Multiple...reactionscomments
It’s Time To BloomMy story begins in late November of 2016. I had a bladder infection that became antibiotic-resistant and traveled to my kidneys. My amazing OBGYN, who has since retired, found some...reactions9comments
Remission Since 2020Hi, my name is Harold. I've been I remission since 2020. All I can say God is good...reactions1comment
From MDS to Leukemia. What Should I Expect?Found out last week my MDS is now leukemia and I will need a bone marrow transplant. Can any one tell me what to expect? I'm scared to death and...reactions17comments
Hodgkins Lymphoma...What?In 2021, I suddenly was faced with extreme vertigo and balance issues. My doctor diagnosed it as a sinus infection. I went to the local walk-in where I was treated...reactions2comments
Essential Thrombocythemia, MPNI was told that since I had a high platelet count, I would be perfect to be a platelet donor. I donated platelets every 3 weeks for several years. At...reactions4comments
CLL Changed My LifeMy name is Lynn. I’m 71 and was diagnosed with Chronic Lymphocytic Leukemia (CLL) in May of 2021. I found my life changing slowly over the past few years; not...reactions14comments
Multiple Myeloma and Side Effects: Where Do I Go From Here?Started Multiple Myeloma treatment late 2018, and in remission since early 2019. You would think I should be relieved and able to resume life as before the diagnosis, but it's...reactions6comments
Surviving CML: Diagnosis, Advocacy, and Triumph over Health System ChallengesNext month will be a year since my diagnosis of CML. It was found accidentally, which was shocking since I had no symptoms and had survived thyroid cancer not once...reactions3comments
MDS Diagnosis JourneyAfter a couple of years with dropping platelet counts and unexplainable fatigue, I was diagnosed in September 2023 with MDS. I don't know what to expect. I've been pretty even...reactions5comments
Hope Through Treatment for CMLI was diagnosed with CML in 2014. I was devastated, as I had already been fighting MS. By the grace of whatever higher power you believe in, I stumbled into...reactions1comment
