Went in for Sciatic Nerve Pain, Came Out with Multiple Myeloma

Last updated: March 2019

Wow, where to start? Well, I can say I moped and cried for a week. After that f**k it. Must be my Brooklyn upbringing. I believe getting diagnosed with multiple myeloma is harder on the family and friends around you because they are helpless to do anything except comfort.

How long do I have, Doc?

The first time I saw my oncologist, I asked her, "so how long do I have to live?" Her answer was, "we really don't know but we have great treatments available". I told her I'm 66 and still have my parents, I can't die before them because "no parent should bury a child". Therefore I told the doctor "If you can't tell me anything, I could leave your office today and get hit by a truck and die, or have a house fall on my head". Yeah, I'm a sarcastic sob LOL :) So, I'm going to do whatever the heck I want to for the rest of my life.

I went through radiation for 25 straight days and that really was nothing. It took longer to drive back and forth than it did to receive the treatment. Chemo also for the first 3 months. I had horrible images about it from the old days when they treated people, but it really was no problem at all for me. My team is the best, most compassionate group of doctors and nurses, and that made it easier.

Family, friends, and a bucket list

After 3 months, they gave me a break and sent me to the City of Hope in Los Angeles for an SCT. Oh sh*t was that hell. But here I am 1.5 years later surrounded by the best family and friend a person could have, especially my wife of 37 years who is my guardian angel.

I am on maintenance meds Revlimid (f**king way too expensive, it's a crime). The cancer is like a bad dream now but the bone pain it caused is an everyday hardship. Some days a wheelchair, some days a crutch. My son got me to ride on a Zamboni during a pro hockey game (was on my bucket list). What a thrill. I have 8 grandkids that I love and they love me. My life is good.

Living my life

To close my mantra is this: I have had clean drinking water for my entire life. I have had access to good medical care for my whole life. I have never gone to bed hungry. I have always had a roof over my head. I have had it better than 99.9% of all the people that have ever lived on this planet. So, no feeling sorry for this guy!

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