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What Type of Blood Cancer Are You Diagnosed With

Editorial Team

New here? Been with us since the beginning?

Introduce yourself below and share a little about your experience as someone living with blood cancer.

CommunityMember376ccf Member
Hi,my name is Arthur, I was diagnosed with cml last year,I have been on chemo 10 months and I have to start a new douse of chemo. Would like to know more about it. Went to u of m to see a cancer doctor.
1. Susan Gonsalves Moderator & Contributor
  Hi Arthur. Wanted to say hello to a fellow CMLer. Are you on a TKI? Where is U of M? If you are able to, I would consult with a CML specialist (hematologist/oncologist) and ask him/her all the questions you need answers to. Knowledge is power. IF I can help you with anything, please let me know. I'm nearing 9 years with CML. Take care, Susan (Blood-Cancer.com Team Member)
2. CommunityMember146882 Member
  why chemo & not TKIs
ivansky9 Member
CMML
1. Angie Netterville Moderator & Contributor
  you're right in asking your hematologists about what is right for you. We are unable to answer medical questions here, but I found this article that may be helpful regarding the drug you mention. https://blood-cancer.com/news/fda-approves-inqovi
  Thank you for sharing about your diagnosis and experience. Please let us know if we can support you in any way.
  Angie -team member
2. Yolanda Brunson-Sarrabo Moderator & Contributor
  I can relate, as I accumulated a whole bin worth of this and that relating to multiple myeloma. It indeed can be overwhelming. Best!
CommunityMemberdeac0c Member
multiple myeloma
1. Angie Netterville Moderator & Contributor
  thanks for your response. It looks like there are others in this thread with the sane diagnosis. If you're comfortable sharing more, it's usually helpful to talk to someone who shares your diagnosis. Are you currently in treatment now?
  Angie -team member
2. Yolanda Brunson-Sarrabo Moderator & Contributor
  Have you started active treatment yet? How are doing today?
Pamb Member
CML
1. Jewels2008 Member
  - I have CML, too, and am nine years in. I have been on Sprycel the entire time and just had my dosage lowered to 40 mgs.
2. Pamb Member
  Hey Jewels
  Nice to meet someone on here with the same strangely .
  I’ve had CML going on two years in September. It’s been a roller coaster to say the least.
  How has your journey been ? You have been on sprycel the whole nine years? Have you ever reach “remission”?
  What was it like in the beginning??