Journey from 2016The year I was diagnosed with AML. Scared to death. The chemo turned water into rust and the metal smell came out of my skin. Hair loss, vomiting, bowels like...Reactions0reactionsComments0 comments
Emotional SupportI have 8 cats and they are such wonderful company for me. I know that they are a lot of work which they are, cleaning out the litter boxes is...Reactions0reactionsComments1 comments
ALLAfter the blood test at the ER, I was told I had blasts!! I asked, "What's that?" They said I have leukemia. I was in disbelief. No one in my...Reactions0reactionsComments6 comments
"Let's Roll": What the Heroes of 9/11 can Teach Us About Facing Blood CancerThe morning of 9/11/01 was a doubly surreal experience for me. I was waiting for an appointment with my doctor at M. D. Anderson's Leukemia Center in Houston while chaos...Reactions0reactionsComments5 comments
Not a Caregiver but...Before I could get a stem cell transplant at UVA, my partner had to sign a waiver saying she would be my caregiver. If not, no transplant. I didn't realize...Reactions0reactionsComments11 comments
SpouseMy husband was diagnosed with multiple myeloma 2 years ago. In the last month, he has taken a turn for the worse. Chemo, radiation, and meds did not help. He...Reactions0reactionsComments2 comments
Do Not Give UpI was diagnosed in 2014 with Waldenstrom’s Macroglobulinemia and have been on different meds and infusions. I am currently on Brukinsa and was on Imbruvica for years. I am traveling...Reactions0reactionsComments0 comments
Not 1 but 2My wife was told she has blood cancer 6 months ago so our journey begins. She's 59 and scared to death she has always been healthy now her life has...Reactions0reactionsComments1 comments
Lost in the SystemThe basic premise of this story is simple I was fighting something but what? I didn’t have symptoms close enough together, we were all in lockdown, and I had too...Reactions0reactionsComments2 comments
Mya Bees JourneyMy daughter Mya was diagnosed with AML M6 back in 2017 at the age of 2 1/2 yrs old. We had no idea at the time that she even had...Reactions0reactionsComments13 comments
How Blood Cancer Changed MeMy diagnosis of MDS was not a complete shock to me. As a retired RN I understand with the symptoms I was experiencing I either had MDS or multiple myeloma...Reactions0reactionsComments16 comments
Multiple Myeloma DiscoveredMine was discovered from blood tests during a routine physical examination at my family doctor's office. It stayed in the smoldering stage for better than 3 years but is now...Reactions0reactionsComments0 comments
Like Mother, Like DaughterI was the primary caregiver for my mother for about four years. A duty I would happily do over again! I watched my mother suffer as she spent all day...Reactions0reactionsComments1 comments
The Long JourneyAt the young age of 36, I was diagnosed with the “older peoples” disease of CLL. Despite the diagnosis, I moved forward with marriage and family. I was told I...Reactions0reactionsComments0 comments
Our Two Blood Cancer FamilyIn the early spring of 2014, I gradually began feeling inordinately bone-tired; the slightest exertion suddenly required a major effort. Just making dinner for two took every ounce of self-discipline...Reactions0reactionsComments13 comments
Finding the RainbowI was diagnosed ~ 3 years ago with AML and underwent a stem cell transplant from my sister. AML has impacted every aspect of my life but not all for...Reactions0reactionsComments4 comments
Blood Cancer and FamilyI have seen my mom suffer with blood cancer most of my life with chemotherapy treatments etc. Now I unfortunately am sharing her journey. Hoping a cure is coming soon...Reactions0reactionsComments4 comments
Plasma Cell LeukemiaI was diagnosed with Plasma Cell Leukemia in June 2020. At the time my hemoglobin was 4 and my platelets were 20. I was told I may have 7-10 months...Reactions0reactionsComments1 comments
Chronic Myeloid LeukemiaI went to my primary care physician in Sept. 2008 and he ordered the blood tests as he did each year. He called to tell me that something was not...Reactions0reactionsComments5 comments
Long Term Remission2006 DX non-Hodgkins follicular. I had no symptoms. I noticed a lump in the clavicle and pointed it out to my GP, after a biopsy, and 3 oncologists (the first...Reactions0reactionsComments0 comments