TOP 10 Things To Do When Diagnosed With MPN (Myeloproliferative Neoplasm)What you need to do when you are diagnosed with an MPN. 🔟. Have a good support system - When you are first diagnosed, it feels like you are on...Reactions0reactionsComments4 comments
Waldenstrom MacroglobulinemiaI was definitively diagnosed with WM in December 2020. I was having progressively worse bloodwork with my GP. It took approximately two years and bone marrow biopsy to conclude that...Reactions0reactionsComments15 comments
Surprise! You Have Leukemia.In October 2019 I started writing down symptoms that I had been feeling off and on for a few years. All of a sudden it seemed like they were happening...Reactions0reactionsComments3 comments
Eye OpenerMy name is Tony. I was diagnosed with ET..essential Thrombocythemia in the fall of 2019. I’m now 57. I had a BMB in February of 2020 to check for myelofibrosis...Reactions0reactionsComments1 comments
Double Blood CancerI never thought of myself as an over-achiever, but as a cancer patient, I guess I am. I am fighting Multiple Myeloma and Therapy-Related Acute Myeloid Leukemia. My diagnosis of...Reactions0reactionsComments5 comments
My P-Vera JourneyA little intro to my story… I have been a very active 73-year-old, walking, biking, hiking, etc. I do not like to go to doctors and was always healthy, so...Reactions0reactionsComments7 comments
StrengthDiagnosed in 2019. Yet work as hard..as if I’m a teen....and they said you’re strong. For that keeps me going....and helps my knowing....and they said I’m strong. Out of sight...Reactions0reactionsComments3 comments
If They Only Knew"Hey! You look great!" I give a half-smile and nod and think of the reflection in the rearview mirror I'd seen a few minutes ago. I'd seen dark circles around...Reactions0reactionsComments21 comments
Double WhammyIn 2020 I started losing weight, looking pale, feeling exhausted, and very stressed. Was working from home. Had agonizing pain in my ribcage. No cracked ribs per x-rays. My sis...Reactions0reactionsComments4 comments
What's Your Facebook Cancer Status?Recently, I posted an update on Facebook. I wrote about how I was competing in a tennis tournament. I included two pictures- one of myself in the hospital after my...Reactions0reactionsComments7 comments
Living with Polycythemia VeraI had polycythemia vera for about 15 years. I have been giving blood twice a month to keep h&h (hematocrit and hemoglobin) in normal lab values. Last year I have...Reactions0reactionsComments1 comments
2 Cancers Back to BackHi to my understanding new friends, I am not great on the computer but I do my best. I was diagnosed with thyroid cancer in 2014. The whole thyroid had...Reactions0reactionsComments4 comments
Because of Childhood CancerI am making a new life. Because of childhood cancer I am making a new life after spending my entire youth fighting for the life that I was promised. Because...Reactions0reactionsComments3 comments
Diagnosed With Multiple MyelomaI was diagnosed with Multiple Myeloma in 2017, it has been quite the journey dealing with changing of meds to side effects. I am learning to surrender to the unknown...Reactions0reactionsComments6 comments
Holding on to God's Promise ❤️I am 46 years old, a mother of 3 and I also have 3 stepchildren. I was diagnosed with Multiple Myeloma on February 25th of 2021. I had had serious...Reactions0reactionsComments13 comments
Graft vs HostI was 14 when I was diagnosed with leukemia. I relapsed twice. When I relapsed for the first time we found that I had blast cells growing on my brain...Reactions0reactionsComments8 comments
A New WorldIt was 2 weeks before Christmas when the headaches started and as my work week continued, my headaches seemed to get worse rather than better. My primary doc suggested it...Reactions0reactionsComments9 comments
BlessedI am a Multiple Myeloma survivor of 5 years living daily pushing through this disease. I have my challenges but life is good! I went a year undiagnosed with several...Reactions0reactionsComments9 comments
MOM THIS IS FOR YOUWhere do I begin? Almost a year ago, my mom was diagnosed with MDS. After a few months, she was re-diagnosed with AML. I’ll be honest, I had no idea...Reactions0reactionsComments6 comments
From Lymphoma to LeukemiaI had no symptoms with Lymphoma NH when I was diagnosed at 55 except for a swollen abdomen which I put down to menopause. Fortunately, my GP sent me for...Reactions0reactionsComments9 comments