Tell us about your symptoms and treatment experience. Take our survey here.

Mantle Cell Lymphoma Stage 4

I was diagnosed with this rare type of NHL in Oct 2013. I chose to do nothing. From everything I read, MCL becomes chemoresistant and remission is short lived. It was not worth it for me to go through chemo and a BMT to just have it return.

In 2018, I did do radiation to my eyes, parotid glands, and chest. I had tumors wrapped around the aorta of my heart. I also had a permanent pleurx tube placed to drain my right lung.

Facing cancer on my own terms

I have pain but can say hospice has done a great job of managing my pain. I am at peace with my decision not to treat and have no regrets. I have traveled and had good quality time with my family.

I have not let my cancer dictate my life but rather faced cancer on my own terms. I am thankful for every day God gives me. I am so grateful to have found this forum💚

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Blood-Cancer.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Have you taken our In America Survey yet?