Acute mylofibrosis I am a caretaker for a spouse with acute mylofibrosis. He was diagnosed last year and was prescribed Jakafi but he became...reactions1reply
Bone biopsy I have AML since 2024 and have over7 bone biopsy ,they are painful and uncomfortable but tolerable...reactionsrepliesCoping
MDS with anemia I was diagnosed last year with MDS with anemia. I get injections when my hemoglobin drops below 10. I haven't seen or...reactionsreplies
I have Essential Thrombocythemia.I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of...reactions3repliesDiagnosis
Fear of Second CancerI had a scare a few weeks back that luckily turned out to be not what we thought. I have to admit...reactions41repliesCopingDiagnosisTips & Advice
Navigating 'But You Don't Look Sick?'Living with a blood cancer diagnosis often means facing the challenge of an invisible illness, where outward appearances can be deceiving. It's...reactions65repliesFriends & FamilyTips & Advice
Advice for building a support systemWhat advice would you give to someone looking to build a strong support system during their blood cancer journey?...reactions102repliesAwarenessIntimacy & RelationshipsMental Health
Anyone aware of possible link between CLL and AVN of hip?I have had CLL for 5 years. I was treated for 18 months with Imbruvica. I requested to discontinue the drug due...reactions3repliesLeukemia