Active todayWhich aspect of your blood cancer treatment journey has presented the biggest challenge?1. Managing treatment side effects and their impact on daily life? 2. Navigating the complexities of treatment options and decisions? 3. Coping with the emotional and psychological toll of treatment?...Reactions 0 reactions Comments11 repliesTips & AdviceCopingTreatment
FeaturedActive 3 days agoChemo Prep Tips What are your burning questions or best practices to share about prepping for chemotherapy?...Reactions 0 reactions Comments16 repliesCopingSide EffectsTreatment
mds-mld-lowI have had 6 rounds of vidaza and have 7th round of vidaza scheduled for June 6th --question one and all - my blood ratios are moving to right direction...Reactions 0 reactions Comments11 repliesFatigueTreatmentMDS
RelapseHave you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...Reactions 0 reactions Comments7 repliesCopingTreatmentDiagnosis
Treatment WonderHow often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions 0 reactions Comments3 repliesCopingResearch & Clinical TrialsTreatment
Chemo med changeMy platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I just changed to a new pharmacy this year...Reactions 0 reactions Comments2 repliesTreatmentAwareness
Access to clinical trials from overseaHi everyone, I have a question re clinical trials. My mom is 59 y.o. with MLL-r AML. She is now 15 months after allo-HSCT and had molecular relapse (dPCR positive)...Reactions 0 reactions Comments6 repliesResearch & Clinical TrialsTreatmentLeukemia
MDS Patient August 2023I was diagnosed with MDS and my worst symptoms are horrible skin itching and burning. I have been reading blogs about this. I would love some suggestions on creme or...Reactions 0 reactions Comments4 repliesTips & AdviceTreatmentMDS
Why ? Why didn’t my Dr. Say anything about a bone marrow transplant? I’m only 71 in great shape. It’s a blood test every 3 months and wait and see what’s next....Reactions 0 reactions Comments3 repliesTreatment
New OptionsWell in the myeloma and I believe lymphoma world there's been a newly FDA-approved drug Teclistamab, which is a bi-specific antigen. Are you excited about these new lines of treatment...Reactions 0 reactions Comments0 repliesMultiple MyelomaResearch & Clinical TrialsTreatment