CLL Forum
Welcome to our CLL Community Forum – a Safe Haven for Sharing, Learning, and Connecting. Whether you're a patient, caregiver, or simply seeking information, join us to discuss experiences, treatment journeys, and find the support you need on your path with Chronic Lymphocytic Leukemia. Our forum is a judgment-free zone dedicated to fostering understanding and resilience in the face of CLL. Come together with a community that truly understands.
Hi !! I found out about 3 months ago I have CLL in remission and I have it since 2016…. How come I never knew about it and only because of a blood test I got, which the rheumatologist ordered it before I was diagnosed with Polymyalgia Rheumatica .
Thank youThank you very much !!!
For me it's the side effects from Revlimid. My numbers go down (remission) then go up again and back on Revlimid. So now I'm on it permanently to keep me in remission.
I guess we should be happy that they found something that worked at all. I know it can be tricky to feel good even though you have to be on medicine for the rest of your life. I actually was diagnosed with rheumatoid arthritis about 40 years ago before my cancer about 10 years ago so I was already on medication for life. Now that I have the lymphoma we have to watch it to make sure it doesn't come back, and in an ironic twist, the medicine I take for arthritis is actually a very close cousin to the medicine they gave me for cancer. How about that? Just know you are not alone and if there is anything we can do to help, let us know. Keep on keepin' on, DPM
