When I first started treatment I felt _____________.

I felt good then. Feel like crap now.

How did I feel going in?


There are lots of stories on line about on how bad chemo can be. My oncologist also had me do my first treatment at the main hospital vs a local infusion center. "Why I asked?" As a precaution he said just in case you need additional emergency resources to address a violent reaction to the drugs.


How did I feel going in ? Scared as hell and nervous.


Two days later I did well with the 8hr infusion and had no apparent issues. My suggestion is bring a book, sign up for a music subscription, and bring headphones if you want to zone out. Time dies slowly in the infusion center


Then 3 days later it became apparent I was not drinking enough fluids ( I was drinking 50 -60 oz a day and learned I personally needed to down 90+ every day).


I began passing out due to low blood pressure and quickly developed a significant bowel blockage that required an ambulance ride, a nasty procedure and a 10 day hospital stay.


How did I feel after that ? Drained but better prepared for infusion 2


My advice ... Drink more liquids than you ever thought you ever needed. Chemo drugs can impact you very quickly in an amazing number of ways. Finally ... Do not remain silent if you are not feeling right.

Scared, nervous, but hopeful, thankful, grateful, cheerful. I know that sounds crazy but it’s actually how I felt and I still feel that way. God had his hand on me and I chose joy even in a bad situation. is right drink water 💦 🥤 it really does help.

I was scared but hopeful as my oncologist explained everything in great detail. When I met with my hematologist/oncologist the Dr. I would see during my treatments I also was informed on all the treatments and which he preferred to use. I had researched the Mayo Clinic Protocals and that is what he preferred to start with. I agreed with his preference. The only thing I wish I would have asked about was which Dr. I would need to contact for treating the side effects. Hematologist are not great at dealing with the issues that go with treatments. I went three weeks with extreme insomnia until I was finally told to contact my General Practitioner. Once I was set up with palliative care things got easier. I tell her everything and she sets up appointments with the right person for each. Not asking about side effects was the thing that set me back as I have had a lot of them! The treatments are a pick of cake, but the side affects really mess with you! My treatments have worked well, I had achieved drug induced remission in three cycles but did not really know that until I met with the stem cell transplant specialist. I did do the harvesting process but not the transplant as the specialist did not feel I would achieve what I wanted with a transplant. He felt I should wait for a better treatment when the drugs failed. It kind of angered me because the goal for doing treatment was to get to transplant. I have since watched others with my same side effects go through transplant and achieve remission. Sometimes I think I should have pushed harder, but he was firmly against it. Time will tell! I take one day at a time!