Active 3 days agoHow do you describe your pain? How do you describe your pain? What do you do to manage it? Is it better or worse than when you were first diagnosed?...reactions29repliesSymptomsSide EffectsCoping
Did you experience fatigue after receiving CAR T-Cell Therapy?"My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and asking my oncologist when it would let up...reactions6repliesSide Effects
What unexpected side effects have you experienced?Blood cancer and treatment can lead to unexpected side effects. What side effects surprised you?...reactionsrepliesSide Effects
Tips for Managing FatigueCancer-related fatigue is a common challenge. If you've faced it, we'd like to hear your tips: -How do you manage cancer-related fatigue? -Share strategies or resources that have helped. -Any...reactions115repliesSide EffectsTips & AdviceFatigue
How has brain fog impacted you?Many people living with blood cancer report being significantly impacted by brain fog and cognitive impairment as treatment side effects. These issues can affect daily life, making it harder to...reactions46repliesSide EffectsTips & Advice
Bone Pain and Blood CancerIn a recent community poll about how blood cancer has impacted your bones, the most common response was pain. Other responses included fractures, weakness, loss of density, and even no...reactions44repliesSymptomsSide EffectsTips & Advice
Which treatment side effects have had the biggest impact on your confidence?-Physical changes (e.g., hair loss, weight changes) -Emotional challenges (e.g., anxiety, depression) -Lifestyle impacts (e.g., fatigue, mobility issues) -Other...reactions23repliesSide EffectsSymptomsNewly Diagnosed
Treatment Side Effects What have been some interesting side effects you' ve experienced with blood cancer during active treatment? I would say my callouts would be the hand and leg spasms and neuropathy...reactions3repliesCopingSide EffectsSymptoms
FeaturedChemo Prep Tips What are your burning questions or best practices to share about prepping for chemotherapy?...reactions25repliesCopingSide EffectsTreatment
Tips for Managing Brain FogWhat are some tips for managing brain fog?...reactions8repliesSide Effects