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Which treatment side effects have had the biggest impact on your confidence?

-Physical changes (e.g., hair loss, weight changes) -Emotional challenges (e.g., anxiety, depression) -Lifestyle impacts (e.g., fatigue, mobility issues) -Other...

Bone Pain and Blood Cancer

In a recent community poll about how blood cancer has impacted your bones, the most common response was pain. Other responses included fractures, weakness, loss of density, and even no...

How long did you experience night sweats before you were diagnosed?

How long did you experience night sweats before you were diagnosed with blood cancer?...

Treatment Side Effects

What have been some interesting side effects you' ve experienced with blood cancer during active treatment? I would say my callouts would be the hand and leg spasms and neuropathy...

Coping with Neuropathy

A few years now in remission, but I still suffer from faint neuropathy in my left thumb. Luckily, it's not every day but still a reminder of the battle wounds...

Polycythemia Vera

Hi. I was diagnosed with PV in 2017. I am on Hydroxvurea. 500 MG, 7 days per week. I have frequent phlebotomies but after the last phlebotomy, I got really...

Comfort and Relief

What is or was your comfort source after treatments? My go-to was a ginger ale and a heating pad for my stomach....

How do you describe your pain?

How do you describe your pain? What do you do to manage it? Is it better or worse than when you were first diagnosed?...

cbc blood test results today

I am feeling happy - all my blood numbers are in "normal" range, my doctor is suspending chemo injections (vidaza) -and going to watch and wait to see what the...

Experiencing Possible Symptoms

Hi everyone I’m 23 years old originally got c diff out of nowhere was not on antibiotics or in a hospital when I had caught it. My first problems started...

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