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Read conversations, start a discussion, and connect with others about blood cancer.

Active 6 days ago

DO You have trouble with people saying 'OMG, YOU DONT LOOK LIKE YOU HAVE CANCER"

I have been diagnosed with Leukemia since 2012. It was REALLY hard at the beginning, mental, physically, emotionally. I am still on medication for it. When i tell people ...

Anyone aware of possible link between CLL and AVN of hip?

I have had CLL for 5 years. I was treated for 18 months with Imbruvica. I requested to discontinue the drug due to severe bone and joint pain. Discontinuing Imbruvica...

Any one else here have polycythemia vera?

I received an email from Kaiser that I have a JAK2 mutation that means I have PV 3 1/2 weeks ago. I haven't spoken to anyway yet as they move...

How long were you sick before you received a diagnosis?

I'm thankful that I had a family doctor who refused to give up on me. By the time the leukemia blast cells were discovered, it was months of repeated bloodwork...

Now Enrolling-Smartphone Wellness Study for Blood Cancer Patients!

Mays Cancer Center is seeking US-based adult blood cancer patients with poor sleep to participate in a 20-week study to test a digital wellness intervention. Participation involves completing online surveys...

What were your first signs/symptoms of your blood cancer?

And how long do you think you had it before it was diagnosed? I'll admit I'm terrified and eager to hear everyones stores, if they feel comfortable sharing!...

Anyone looking for support groups around blood cancer?

hi all i have found it VERY hard to find virtual support groups for people with blood cancer. does anyone know of any online groups happening?...

Anyone looking for support groups around blood cancer? join here

Hi All I have created a support group after struggling to find some online- it is on reddit and it open to anyone going through blood cancer (or any other...

Access to clinical trials from oversea

Hi everyone, I have a question re clinical trials. My mom is 59 y.o. with MLL-r AML. She is now 15 months after allo-HSCT and had molecular relapse (dPCR positive)...

Pharmaceutical Patient Assistance Limitations

Hi, all - Over the past ten years, I have been fortunate that pharmaceutical companies have allowed me to enroll in patient assistance programs to have financial access to my...

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