Chemo, Treatments and Side Effects: The Stuff they FORGOT to Tell You!
All of us with blood cancer don't necessarily go through chemotherapy. But most of us go through some form of treatment...
We are familiar with the "usual" side effects, but I will tell you I have experienced things that I wasn't prepared for! Some have been small and others have been... "What in the world is happening??" LOL!!
Have you experienced any unusual or different side effects from chemo or any other treatments that you really wish you someone had prepared you for? How did you handle it?
~Leya Elijah - Team Member~
Thats sad 😥 I have naseau in morning trying new things peppermint gum and tea may seam to help bring it under control or it could be combination and a bowl of sativa for energy and calming of the gut in am after hu at night with a bowl of cereal.
Empty stomach seems worse but gaining weight eating and going to bed ?
Have to find the right combo any help have stomach issues ulcer polyps gerds already prior to humy cancer Dr.’s nutrition advice for gaining weight was to eat lots of pies, cake, ice cream….and other sweets and fats. I normally eat extremely healthy. I did it for a week and felt sick and horrible the whole time . It was not too hard to figure out what healthy foods could make me gain weight. I too have lost an appetite for different foods. I also love lemon pepper. When I had cancer I bought a deep fryer and fried everything from chicken fingers to Oreos! It helped me keep up my weight and for a year or two the cholesterol increase they told me was an OK trade off. Of course, giving up that deep fryer after I was eventually in remission, well.... that's another story! Ha ha. Also a lot of Frank's Hot Sauce!! Keep on keepin' on, DPM
My nose and mouth became mucus pits all the time. I see black floaty things and have no depth perception. The coup de grace are panic attacks. Good times.
@Angie Netterville I finished chemotherapy last July and was told that I was in remission and there was no evidence of disease. I was ravaged by the chemo but grateful for a return to health. I had had over 10 cluster tumors in my abdomen. I vividly remember the feeling. That’s why having that feeling again is devastating. I have “scanxiety” especially when my results come in my email and I interpret them myself because I couldn’t see the doctor for 4 days . I sent myself into a 4 day nightmare of panic attacks and emotional insanity. Now I
I’m waiting for a pet scan. Hopefully my insurance will approve it.
I use breathwork to manage panic attacks. I need to do more yoga, that helps too. I also use reflexology and massage when I can afford it. I had lymphoma so I had a concern that by doing certain massage techniques, it would be detrimental and may spread the cancer. I also use Reiki. Sometimes I just let it out and cry. Catharsis…There's nothing wrong or taboo with a good cry either. I used mindfulness sessions more when I was in corporate, but it did filter its way to be quite helpful on the medical end as well. Wishing you the very best!
Oh boy, the mouth sores. I knew there was some mouth stuff but they did not prepare me for how bad the sores were when the candida in the mouth became overgrown because of the massive dose of steroids that comes with chemo. It took me almost a week of anti-fungals to get rid of it to the point where eating wasn’t a total nightmare. After that it was hot sauce on everything just to taste something. Keep on keepin’ on, DPM
Hi Daniel, I had some of that “magic mouthwash” which helped (it should have, it was very expensive) but I had a film all over the inside of my mouth that still remains a year after chemo. Thanks for the info. I didn’t realize that it was caused by the steroids. I tried everything to not have to take prednisone but my doc was adamant. They really mess me up.
I love hot sauce too! My ulcers don’t though.Yes I had that magic mouthwash as well. For me, though, it was about as useful as magic is in real life. LOL I had to end up taking the anti fungal pills instead and that helped to clear it up in my case after the steroids made my mouth flora run wild! Let us know if there’s anything we can do to help! By the way: Frank’s Hot Sauce or Sriracha? 😊 Keep on keepin’ on, DPM
