Yolanda Brunson-Sarrabo
A few years now in remission, but I still suffer from faint neuropathy in my left thumb. Luckily, it's not every day but still a reminder of the battle wounds. A doctor stated it never truly goes away.
So, how would you describe your neuropathy?
Pin and needles on fire, or something else?
jrt402 Member
My right foot -toes have it and it is painful for me
Yolanda Brunson-Sarrabo Moderator & Contributor
Ann Harper Moderator & Contributor
Paula Rosado Moderator
I didn't know what neuropathy was until I experienced it. I spoke to my oncologist about it and described it as ants crawling and biting under the skin. My fingers go numb, my left foot goes numb and restless legs when I tried to rest. My hands would drop things unexpectedly and little things like opening the fridge door took more concentration than usual. I bang on my keyboard like I'm hammering a nail! It wasn't something that got better with time and although I've heard that gabapentin doesn't work for everyone, it's been very effective for me. I'm on a daily dose and thankfully getting a very restful night now.
Paula Rosado Moderator
Yolanda Brunson-Sarrabo Moderator & Contributor
I'm glad someone finally figured it out. Best!
Daniel Malito Moderator
Amanda Brunson Moderator & Contributor
Yolanda Brunson-Sarrabo Moderator & Contributor
Dennis Golden Moderator
Neuropathy for me started around treatment # 3 ... At first it was limited to my pointer finger and my " social" finger tips . Six months later it was all of my finger tips. Buttoning anything was just impossible without looking focusing For me it was just feeling of being numb. It was not until after my treatments ended did it discover my toes were also numb along with significant toe and foot cramps.
Currently do not experience any odd feelings or pins/needles in fingers. At this time the neuropathy in my toes feels like my socks are wadded up in my shoes. My fingers improved dramatically and currently have no issues and can button shirts and even thread needles .
At first my oncologist thought my toes would improve . My foot MD said he doubted it as most likely the nerves were destroyed by the chemo . He was correct. Dennis(BloodCancer.com TEAM)
Yolanda Brunson-Sarrabo Moderator & Contributor