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Living with Multiple Myeloma

Welcome to our Multiple Myeloma Community Forum – a Safe Haven for Sharing, Learning, and Connecting. Whether you're a patient, caregiver, or simply seeking information, join us to discuss experiences...

Onset Issues

Did your doctor ever express the possibility of an onset condition with multiple myeloma? It refers to cancers diagnosed at ages 20-50. The numbers seem to be rising, Are you...

Now Enrolling-Smartphone Wellness Study for Blood Cancer Patients!

Mays Cancer Center is seeking US-based adult blood cancer patients with poor sleep to participate in a 20-week study to test a digital wellness intervention. Participation involves completing online surveys...

Daily multiple vitamins

I asked my Oncologist yesterday about adding a daily multiple vitamin to my daily pill regimen. (I had taken them before my cancer showed up, I was just out). He...

It's Myeloma Action Month: What's it like to live with an incurable condition?

This Myeloma Action Month we want to continue to raise awareness about multiple myeloma. Share what it's like to live with an incurable blood cancer below....

What is one thing you want the world to know about multiple myeloma?

Share one thing you want the world to know about life with multiple myeloma....

Dealing with Comparisons

How and have you dealt with anyone comparing your blood cancer with something else...perhaps less life-threatening? I recall explaining multiple myeloma, but one individual had the audacity to compare it...

New Options

Well in the myeloma and I believe lymphoma world there's been a newly FDA-approved drug Teclistamab, which is a bi-specific antigen. Are you excited about these new lines of treatment...

Climbing Obstacles

Coping with blood cancer is not easy, and many may find it just another "thing" to overcome. How have you taken this diagnosis and turned around this obstacle? Or are...

How has your life changed after diagnosis?

I will start. I woke up every morning and would look at my body wondering how I would change. I remember the day about 8 months later and my first...

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