Active 8 days agoHow has brain fog impacted you?Many people living with blood cancer report being significantly impacted by brain fog and cognitive impairment as treatment side effects. These issues...reactions79repliesSide EffectsTips & Advice
Finding Support in Unexpected PlacesSometimes, support comes from places we least expect—whether it's a casual acquaintance, an online community, or a new hobby that brings you...reactions7repliesFriends & FamilyCopingMental Health
Downplaying my own chronic issuesSince DX in 2024, I continue to swing from denial that I have cancer to OMG, I have cancer. I CAN'T (mental...reactions1replyFriends & Family
Tips for Managing Brain FogWhat are some tips for managing brain fog?...reactions12repliesSide Effects
Blood Cancer from a Patient and Family PerspectiveBlood cancer affects more than just the person diagnosed. From the patient’s side, the experience often begins with confusion, repeated tests, and...reactions4repliesAwarenessCaregiversParents and Caregivers
FeaturedBone Marrow Biopsy AftercareDoes anyone have tips on bone marrow biopsy aftercare? What things can you do, what should you avoid?...reactions31repliesTips & Advice
DrsWhat not to do to your patients.dont do not give your diagnosis to your patient over the phone. My first dr did...reactions1reply
Did you experience fatigue after receiving CAR T-Cell Therapy?"My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and...reactions12repliesSide Effects
Navigating 'But You Don't Look Sick?'Living with a blood cancer diagnosis often means facing the challenge of an invisible illness, where outward appearances can be deceiving. It's...reactions64repliesFriends & FamilyTips & Advice
Uncertain of diagnosis I'm 43 and I've experienced intermittent double vision, extreme muscle weakness (to the point I'm now in a wheelchair) and sensory changes...reactions1replyDiagnosis