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Read conversations, start a discussion, and connect with others about blood cancer.

Chemo, Treatments and Side Effects: The Stuff they FORGOT to Tell You!

All of us with blood cancer don't necessarily go through chemotherapy. But most of us go through some form of treatment... We are familiar with the "usual" side effects, but...

T-PLL

I started with CLL and was diagnosed with T-PLL A year ago January I started Campath and was in remission after 8 weeks. Still in remission. I’m 78 years old....

Power of No

Do you find it now easier for you to say no to things you don't want to do when it comes to treating your condition? Or is it still a...

If You Could...

If you could where would you want your treatment care to take place? *Another Country *On a Beach *Clean & Sterile & everything in White *Stay Where I'm At Though...

Watch and Wait?

What are your thoughts on waiting it out before starting treatment for your blood cancer? Does it make sense or would you prefer to start early and get the process...

What to do when treatment has stopped working

I was diagnosed with primary myelofibrosis in 2022 at age 79. I started treatment with weekly injections to stimulate my bone marrow to produce more red blood cells. It worked...

Truth Teller

How comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care? Do you think they leave room to exaggerate...

Hydroxyurea

I've been taking Hydroxyurea, 1000 mg a day for almost 6 years now. My platelet numbers hang out between 350-450 on average. I know the medication itself could give me...

Anyone else living with a jak-2 mutation?

Question from a member: I was diagnosed two and a half years ago with a jak-2 mutation. My plates were 720 . I am taking Hydroxyurea and am staying around...

56 years years old and Just been diagnosed with PV blood cancer

I haven't started treatment yet but My concern has been more about how I will feel under treatment since I have to take this treatment for years to come, hopefully...

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