Processing cancer as a young adult...I was 15 when being diagnosed with AML and all I remember is wanting to play sports, hang out with my friends, and be socially accepted....Reactions 0 reactions Comments1 repliesLeukemia
FeaturedDoes anyone else struggle with annoying joint pain post treatment or SCT. ...Wondering if anyone has dealt with this and might have suggestions for dealing with it....Reactions 0 reactions Comments6 repliesFatigue
Sponsored: A Fifth-Generation Farmer’s Journey With DLBCL...Wanting to be safe, he and his wife of more than 50 years, Candace, visited the doctor to have his symptoms examined....
15 years with MDS ...I have difficulty sleeping at night I wake up tired I have been taking 2400 mg of gabapentin I’ve been taking 1800 mg of alpha lipoic acid I...Reactions 0 reactions Comments3 replies
Stopping Treatment...The consultant hematologist that's treating me wants me to trial coming off treatment. He believes I am a good candidate to try it....Reactions 0 reactions Comments8 repliesTreatment
What "New Normal?" ...It is taking time to understand a fundamental truth. At this very moment we are full of the potential of what we will ever be....Reactions 0 reactions Comments5 repliesTips & AdviceAwareness
Mental Health Awareness Discussion...As people affected by blood cancer, we are constantly taking care of our bodies and it is important that we also take care of our minds....Reactions 0 reactions Comments2 repliesMental HealthAwareness
FeaturedSelf-Care While Living With Blood Cancer...Your wisdom can offer valuable guidance to others seeking ways to prioritize self-care and improve their overall well-being while dealing with blood cancer...Reactions 0 reactions Comments73 repliesCopingTips & AdviceMental Health
What else do I have beside blood-cancer..Polycythemia vera, Hemochromatosis, PFO Stage III, with highly mobile aneurysm, Bels Palsy, Lichen Planus, Hypoglycemia. Hematologist treating with phlebotomies once monthly....Going thru anxiety, depression and major fatigue. Does anyone have similar ???...Reactions 0 reactions Comments3 repliesNewly DiagnosedDiagnosisFatigue
Anyone Have Suggestions That Don’t Require Chemo?...I was able to get genetic testing finally and my PV was caught early....Reactions 0 reactions Comments7 repliesTreatment
Steak and Capicola Wraps...Is cheese making you bloated? That’s ok. Remove it. It’s all up to you and what foods you can tolerate now.... By Maria ValenteBookmark for laterReactions 0 reactions Comments5 comments
How has your life changed after diagnosis? ...Not that I don’t have issues like having rouse a cane or walking sticks outside....Reactions 0 reactions Comments2 repliesMultiple MyelomaCopingExercise
What to do when treatment has stopped working...My co pays are getting very expensive so I have decide to stop my treatment....Reactions 0 reactions Comments7 repliesCostTreatment
Navigating 'But You Don't Look Sick?'...Living with a blood cancer diagnosis often means facing the challenge of an invisible illness, where outward appearances can be deceiving....Reactions 0 reactions Comments55 repliesFriends & FamilyTips & Advice
Pharmaceutical Patient Assistance Limitations...I'm not wealthy, but I do have a few resources after working decades, saving, and investing (sometimes none too wisely)....Reactions 0 reactions Comments3 repliesCostLeukemiaTips & Advice
Coping Strategies and Lifestyle Changes: Sharing Experiences and Support...We look forward to hearing your insights and experiences in managing different types of blood cancer....Reactions 0 reactions Comments4 repliesCopingTips & AdviceDiagnosis
Clinical Trials Conversations...The doctor knows best, but having that conversation on if you would be a good candidate or not gets the ball running in self-advocacy....Reactions 0 reactions Comments6 repliesAwarenessHealthcare TeamResearch & Clinical Trials
Seeking 2nd Opinions...Tips: Work with your insurance rep in getting a roster of doctors close in your area and within your network, then do your research....Reactions 0 reactions Comments4 repliesDiagnosisNewly DiagnosedTips & Advice
Vida Maude Single Belbin...Her resiliency never wavered and she actually apologized to me for having to leave us so soon....Reactions 0 reactions Comments4 repliesMemory Wall
Mays Cancer Center Smartphone Wellness Study for Blood Cancer Patients! ...blood cancer patients, ages 18 and up and currently undergoing active treatment, to participate in a National Institutes of Health-funded research study lasting...Reactions 0 reactions Comments0 replies