Hi everyone, My name is Shawn and I am 54 years old and recently diagnosed with multiple issues, but on here for PV. My father passed from PV, he had a 35-pound spleen that burst, but live 9 years longer. I was diagnosed finally by a Rheumatologist because of the symptom of itching after a shower.
I was able to get genetic testing finally and my PV was caught early. I only have to do phlebotomy (bloodletting) right now quarterly and wondered if anyone has suggestions that don’t require chemo? I also have researched Turmeric (Cur-cumin) and can’t find dosing info. I don’t want my next step to be chemo if this accelerates. I have unspecified immune problems, degenerative bone disease, Scleroderma & skin Cancer. Any advice is welcome. Thank you. I wish the best to everyone.