15 years with MDS

I was diagnosed with MDS 15 years ago I’m not in treatment I just get injections of Neulasta every three weeks recently. I’ve had to add Procrit to boost my red cells and my hemoglobin before I added this my white count would be 1500 to 2000 red cells 3.02 hemoglobin nine I have also had prostate cancer receive radiation for it. No problem since the life, a significant fatigue, and now I notice I have a lot more skin issues petechiae I also in addition to fatigue I have a complete loss of energy that can just come from anywhere. I could be driving a car and have to pull over. It’s very scary. No warning at all. I have difficulty sleeping at night I wake up tired I have been taking 2400 mg of gabapentin I’ve been taking 1800 mg of alpha lipoic acid I suffer with neuropathy I have diabetes type two but controlled but the burning in my toes and and numbness never goes away. It’s 24 seven I’ve recently had an additional bone marrow biopsy, which shows my disease was the same 15 years before they claimed that’s a good thing, but I feel that my illness is advancing, particularly the numerous petechiae on my skin, and my hemoglobin dropping sometimes to as low as 8 to 8 1/2 I don’t know what the future holds for me, but there’s nothing I can do about it I just feel hopeless turn awful disease