Forums

Read conversations, start a discussion, and connect with others about blood cancer.

Retrospect...

What would you tell your younger self before blood cancer? I would say... Girl, let me tell it's gonna be rough, but...

People Can Say the Craziest Things!

What has been the craziest thing said to you, while going through treatment?...

3 Blood Diseases (Cancer)

I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda...

Outlets

What are your outlets to maintain balance in life? diagnosis, treatment, job, bills… you know how all that goes....

Sky high Platelets and Ferritin with MDS

Hi there, I was diagnosed with MDS two years ago. Yesterday my bloodwork showed very high Platelets (1,070) and Ferritin (400). My...

The ONE Thing

We all make resolutions like not eating sweets or I want to lose a few pounds etc. When you sort out all...

Truth Teller

How comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care?...

Ms. Jackie May

My mom died in 1998. Two of my uncles from my mom's side died 6 months apart from one another. My brother...

Transplant games

Has anyone ever heard of the transplant games? I’ve always wanted to go. They have things such as track and field bowling...

CLL mutation TP53

I can not find anyone who has experienced this!! Either firsthand or family/ friend. I know it's not good ,poor prognosis, etc...

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