3 Blood Diseases (Cancer)
I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda Maryland. Ohio State University James Cancer doesn’t know what to do to treat me and is sending me to NIH. Does anyone know of anywhere that has all 3? I’m very nervous. I’ve known since 10/28/22 and to eat 3/6/23 I haven’t had any treatment. I’m concerned if do ever treat keeping 3 in remission.
So sorry to hear of your ordeal. I've never heard of all three, nor Vexas. I would suggest perhaps posing your question on our Facebook page,
as the reach may be wider for possible shared experiences. I suggest writing down your questions for NIH and have them guide you accordingly, and
advising if and how many other patients experience this similar diagnosis. Wishing you the very best!Scott M 
I don't' have those 3, but I have 3 other diseases at once and I can certainly agree it's scary and overwhelming, especially at first. The most hopeful thing I can say is that most people do eventually find a routine that works for them, even though it may take time. In the meantime, though, we are here to help however we can. You don't have to go through it alone. Keep on keepin' on, DPM Thank you. Prayers your doing ok.
