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Read conversations, start a discussion, and connect with others about blood cancer.

mds-mld-low

I have had 6 rounds of vidaza and have 7th round of vidaza scheduled for June 6th --question one and all - my blood ratios are moving to right direction...

Relapse

Have you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...

Treatment Wonder

How often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...

Chemo med change

My platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I just changed to a new pharmacy this year...

Access to clinical trials from oversea

Hi everyone, I have a question re clinical trials. My mom is 59 y.o. with MLL-r AML. She is now 15 months after allo-HSCT and had molecular relapse (dPCR positive)...

MDS Patient August 2023

I was diagnosed with MDS and my worst symptoms are horrible skin itching and burning. I have been reading blogs about this. I would love some suggestions on creme or...

Why ?

Why didn’t my Dr. Say anything about a bone marrow transplant? I’m only 71 in great shape. It’s a blood test every 3 months and wait and see what’s next....

New Options

Well in the myeloma and I believe lymphoma world there's been a newly FDA-approved drug Teclistamab, which is a bi-specific antigen. Are you excited about these new lines of treatment...

Chemo, Treatments and Side Effects: The Stuff they FORGOT to Tell You!

All of us with blood cancer don't necessarily go through chemotherapy. But most of us go through some form of treatment... We are familiar with the "usual" side effects, but...

T-PLL

I started with CLL and was diagnosed with T-PLL A year ago January I started Campath and was in remission after 8 weeks. Still in remission. I’m 78 years old....

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