Sensible ChoicesHave you found yourself making many life choices outside of your condition, that make you struggle with should you or shouldn't you? Did you have a cocktail here and there...Reactions0reactionsComments0 repliesCopingTips & Advice
Financial Support DiscussionWhat areas of financial support or assistance do you wish were more readily available for individuals living with blood cancer?...Reactions0reactionsComments16 repliesTips & Advice
How do you feel about your health care team?Do you feel supported and heard by your care team? Do they give you the time to ask questions and address concerns? What have they done to make you feel...Reactions0reactionsComments14 repliesHealthcare TeamTips & AdviceAwareness
Looking for suggestions on side effects I’m diagnosed with MM in 2020. Recently I got a lytic lesion on my rib and the other day I coughed. It is hurting more now. How to manage a...Reactions0reactionsComments1 repliesTips & Advice
How do you balance being informed VS overwhelmed? How do you navigate the balance between staying informed about your condition and avoiding overwhelming yourself with medical information or statistics?...Reactions0reactionsComments15 repliesTips & AdviceNewly Diagnosed
Which aspect of your blood cancer treatment journey has presented the biggest challenge?1. Managing treatment side effects and their impact on daily life? 2. Navigating the complexities of treatment options and decisions? 3. Coping with the emotional and psychological toll of treatment?...Reactions0reactionsComments13 repliesTips & AdviceCopingTreatment
Try to find ways to cope..Taking jakifi is a wonder medicine he feels so much better...Reactions0reactionsComments1 repliesTips & AdviceCopingCaregivers
FeaturedSelf-Care While Living With Blood CancerIn this forum, we'd love to hear from those who have faced the unique challenges of living with blood cancer. How do you prioritize self-care amidst the complexities of your...Reactions0reactionsComments73 repliesMental HealthCopingTips & Advice
Which lifestyle change has had the most positive impact on managing your blood cancer?1. Regular exercise and physical activity 2. Adopting a balanced and nutritious diet 3. Prioritizing stress-reducing activities like meditation or yoga Something else? Share what has been most impactful for...Reactions0reactionsComments3 repliesTips & AdviceCoping
Medical GaslightingHave you ever been gaslit by your doctor or healthcare team? How did it make you feel and what did you do about it?...Reactions0reactionsComments0 repliesTips & Advice