What were your first signs/symptoms of your blood cancer?And how long do you think you had it before it was diagnosed? I'll admit I'm terrified and eager to hear everyones stores, if they feel comfortable sharing!...Reactions 0 reactions Comments4 repliesLeukemia
Which lifestyle change has had the most positive impact on managing your blood cancer?1. Regular exercise and physical activity 2. Adopting a balanced and nutritious diet 3. Prioritizing stress-reducing activities like meditation or yoga Something else? Share what has been most impactful for...Reactions 0 reactions Comments3 repliesTips & AdviceCoping
T cell PLL Diagnosed in July of this year with a very rare form of leukemia. I am in the inactive stage, called wait and watch. I am closely monitored with blood work...Reactions 0 reactions Comments6 repliesCopingDiagnosis
What is ONE Thing Gets You Through The Challenges Every Day?Blood-Cancer comes with a lot of challenges. I have found that focusing on one thing helps me cope on a daily basis. For me that one thing is being in...Reactions 0 reactions Comments0 repliesCoping
Block or CopeA diagnosis is some serious business and a lot to get through in processing. How do or have you processed it all and everything that is entailed? Have you blocked...Reactions 0 reactions Comments0 repliesCopingDiagnosisNewly Diagnosed
Nk T Cell Non Hodgkins Lymphoma unlikely patientHi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old...Reactions 0 reactions Comments2 repliesCopingDiagnosisDepression
FeaturedConnect, Support, and Share Experiences with fellow MDS WarriorsLiving with Myelodysplastic Syndromes can be challenging, but you're not alone on this journey. We're here to listen and support each other through the ups and downs of living with...Reactions 0 reactions Comments35 repliesTips & AdviceCopingMDS
MDS Watch and WaitHi everyone! I am on Watch and Wait for MDS. My MDS diagnosis is Refractory Anemia with Multi Lineage Dysplasia (Red blood cells and Platelets). I've been on Watch and...Reactions 0 reactions Comments30 repliesMDS
mds-mld-lowI have had 6 rounds of vidaza and have 7th round of vidaza scheduled for June 6th --question one and all - my blood ratios are moving to right direction...Reactions 0 reactions Comments11 repliesFatigueTreatmentMDS
What age were you diagnosed?What age were you diagnosed with a blood cancer?...Reactions 0 reactions Comments105 repliesDiagnosis