How do you describe your pain? How do you describe your pain? What do you do to manage it? Is it better or worse than when you were...reactions46repliesSymptomsSide EffectsCoping
Did you experience fatigue after receiving CAR T-Cell Therapy?"My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and...reactions8repliesSide Effects
LGLdoes anyone have large granular leukocytic leukemia and if so what treatment was or is being done and what are the results?...reactions5replies
Handling MisdiagnosisHave you met being misdiagnosed with doctors over time with your disease? How have you handled or better yet rebuilding trust with...reactions16repliesAwarenessDiagnosisHealthcare Team
What else do I have beside blood-cancer..Polycythemia vera, Hemochromatosis, PFO Stage III, with highly mobile aneurysm, Bels Palsy, Lichen Planus, Hypoglycemia. Hematologist...Going thru anxiety, depression and major fatigue. Does anyone have similar ???...reactions3repliesNewly DiagnosedDiagnosisFatigue
Dealing with ComparisonsHow and have you dealt with anyone comparing your blood cancer with something else...perhaps less life-threatening? I recall explaining multiple myeloma, but...reactions17repliesCopingAwarenessMultiple Myeloma
Polycythemia veraWas just diagnosed with Polycythemia vera about three months ago. Currently just having phlebotomies every two weeks and drinking water continuously and...reactionsreplies
How has blood cancer impacted your personal relationships?Living with blood cancer impacts every aspect of life. This includes family and friends. How has it impacted your personal relationships?...reactions34replies
Blood-cancer effects every aspect of our lives. It takes a toll. We need to rest and digest to recuperate, to heal. Have...I was diagnosed with blood-cancer in 2011. There have been events I thought I would not survive. It takes a toll. How...reactions4replies
Question about bone pain & light chain resultsHello, I am a patient. Does anyone know what could cause these symptoms and lab results: * Bone pain for 40 years...reactions1replyMDS