Active 8 days agoBlue ToesI have had Polycythemia Vera for four years now and I'm suffering from Polycythemia toes or Blue Toes. The big toes on each foot are swollen, red, raw and even...Reactions 0 reactions Comments3 replies
Active 8 days agoTips for Managing FatigueCancer-related fatigue is a common challenge. If you've faced it, we'd like to hear your tips: -How do you manage cancer-related fatigue? -Share strategies or resources that have helped. -Any...Reactions 0 reactions Comments71 repliesSide EffectsTips & AdviceFatigue
Exercise Did anyone workout while in active treatment and if so how did working out while in active treatment make you feel?...Reactions 0 reactions Comments17 repliesAwarenessCopingDiagnosis
FeaturedIf you wrote a book about your journey with blood cancer, what would your book title be? Share your title below!...Reactions 0 reactions Comments83 repliesAwareness
How do you feel about your health care team?Do you feel supported and heard by your care team? Do they give you the time to ask questions and address concerns? What have they done to make you feel...Reactions 0 reactions Comments12 repliesHealthcare TeamTips & AdviceAwareness
Try to find ways to cope..Taking jakifi is a wonder medicine he feels so much better...Reactions 0 reactions Comments1 repliesTips & AdviceCopingCaregivers
FeaturedSelf-Care While Living With Blood CancerIn this forum, we'd love to hear from those who have faced the unique challenges of living with blood cancer. How do you prioritize self-care amidst the complexities of your...Reactions 0 reactions Comments73 repliesCopingTips & AdviceMental Health
What were your first signs/symptoms of your blood cancer?And how long do you think you had it before it was diagnosed? I'll admit I'm terrified and eager to hear everyones stores, if they feel comfortable sharing!...Reactions 0 reactions Comments4 repliesLeukemia
Which lifestyle change has had the most positive impact on managing your blood cancer?1. Regular exercise and physical activity 2. Adopting a balanced and nutritious diet 3. Prioritizing stress-reducing activities like meditation or yoga Something else? Share what has been most impactful for...Reactions 0 reactions Comments3 repliesTips & AdviceCoping
T cell PLL Diagnosed in July of this year with a very rare form of leukemia. I am in the inactive stage, called wait and watch. I am closely monitored with blood work...Reactions 0 reactions Comments6 repliesCopingDiagnosis