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Read conversations, start a discussion, and connect with others about blood cancer.

3 Blood Diseases (Cancer)

I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda...

Outlets

What are your outlets to maintain balance in life? diagnosis, treatment, job, bills… you know how all that goes....

Sky high Platelets and Ferritin with MDS

Hi there, I was diagnosed with MDS two years ago. Yesterday my bloodwork showed very high Platelets (1,070) and Ferritin (400). My...

The ONE Thing

We all make resolutions like not eating sweets or I want to lose a few pounds etc. When you sort out all...

Hairy Cell Leukemia

Hi All! Has anyone gone through treatment for hairy cell leukemia?...

Truth Teller

How comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care?...

Ms. Jackie May

My mom died in 1998. Two of my uncles from my mom's side died 6 months apart from one another. My brother...

Transplant games

Has anyone ever heard of the transplant games? I’ve always wanted to go. They have things such as track and field bowling...

Covid risk and trade offs for blood cancer patients

I haven’t heard much talk in the cancer community about how Covid has made the lives of people with cancer and their...

CLL mutation TP53

I can not find anyone who has experienced this!! Either firsthand or family/ friend. I know it's not good ,poor prognosis, etc...

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