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Read conversations, start a discussion, and connect with others about blood cancer.

How do you balance being informed VS overwhelmed?

How do you navigate the balance between staying informed about your condition and avoiding overwhelming yourself with medical information or statistics?...

Now Enrolling-Smartphone Wellness Study for Blood Cancer Patients!

Mays Cancer Center is seeking US-based adult blood cancer patients with poor sleep to participate in a 20-week study to test a digital wellness intervention. Participation involves completing online surveys...

ET and Anemia

I just heard on an MPN Facebook live program that rarely does a person with ET have anemia. If they do it means that they are in transformation. I have...

Which aspect of your blood cancer treatment journey has presented the biggest challenge?

1. Managing treatment side effects and their impact on daily life? 2. Navigating the complexities of treatment options and decisions? 3. Coping with the emotional and psychological toll of treatment?...

Chemo - If you could magically remove one side-effect, what would it be?

Chemo, even when it's good, it's still pretty bad. So I am asking - if you could magically remove one side effect of the treatment, what would it be? For...

Blue Toes

I have had Polycythemia Vera for four years now and I'm suffering from Polycythemia toes or Blue Toes. The big toes on each foot are swollen, red, raw and even...

Exercise

Did anyone workout while in active treatment and if so how did working out while in active treatment make you feel?...

Try to find ways to cope..

Taking jakifi is a wonder medicine he feels so much better...

Featured

Self-Care While Living With Blood Cancer

In this forum, we'd love to hear from those who have faced the unique challenges of living with blood cancer. How do you prioritize self-care amidst the complexities of your...

What were your first signs/symptoms of your blood cancer?

And how long do you think you had it before it was diagnosed? I'll admit I'm terrified and eager to hear everyones stores, if they feel comfortable sharing!...

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