Try to find ways to cope..Taking jakifi is a wonder medicine he feels so much better...Reactions0reactionsComments1 repliesTips & AdviceCopingCaregivers
FeaturedSelf-Care While Living With Blood CancerIn this forum, we'd love to hear from those who have faced the unique challenges of living with blood cancer. How do you prioritize self-care amidst the complexities of your...Reactions0reactionsComments73 repliesMental HealthCopingTips & Advice
What were your first signs/symptoms of your blood cancer?And how long do you think you had it before it was diagnosed? I'll admit I'm terrified and eager to hear everyones stores, if they feel comfortable sharing!...Reactions0reactionsComments4 repliesLeukemia
Which lifestyle change has had the most positive impact on managing your blood cancer?1. Regular exercise and physical activity 2. Adopting a balanced and nutritious diet 3. Prioritizing stress-reducing activities like meditation or yoga Something else? Share what has been most impactful for...Reactions0reactionsComments3 repliesTips & AdviceCoping
T cell PLL Diagnosed in July of this year with a very rare form of leukemia. I am in the inactive stage, called wait and watch. I am closely monitored with blood work...Reactions0reactionsComments6 repliesDiagnosisCoping
What is ONE Thing Gets You Through The Challenges Every Day?Blood-Cancer comes with a lot of challenges. I have found that focusing on one thing helps me cope on a daily basis. For me that one thing is being in...Reactions0reactionsComments0 repliesCoping
Nk T Cell Non Hodgkins Lymphoma unlikely patientHi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old...Reactions0reactionsComments2 repliesDiagnosisDepressionCoping
MDS Watch and WaitHi everyone! I am on Watch and Wait for MDS. My MDS diagnosis is Refractory Anemia with Multi Lineage Dysplasia (Red blood cells and Platelets). I've been on Watch and...Reactions0reactionsComments30 repliesMDS
mds-mld-lowI have had 6 rounds of vidaza and have 7th round of vidaza scheduled for June 6th --question one and all - my blood ratios are moving to right direction...Reactions0reactionsComments11 repliesFatigueTreatmentMDS
Financial assistance I'm back for more advice.. I'm in day 72 after my auto stem cell procedure. In my work field (working with individuals with idd) I'm not sure when I can...Reactions0reactionsComments3 repliesCostCopingAwareness