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Read conversations, start a discussion, and connect with others about blood cancer.

Blue Toes

I have had Polycythemia Vera for four years now and I'm suffering from Polycythemia toes or Blue Toes. The big toes on each foot are swollen, red, raw and even...

Exercise

Did anyone workout while in active treatment and if so how did working out while in active treatment make you feel?...

Try to find ways to cope..

Taking jakifi is a wonder medicine he feels so much better...

Featured

Self-Care While Living With Blood Cancer

In this forum, we'd love to hear from those who have faced the unique challenges of living with blood cancer. How do you prioritize self-care amidst the complexities of your...

What were your first signs/symptoms of your blood cancer?

And how long do you think you had it before it was diagnosed? I'll admit I'm terrified and eager to hear everyones stores, if they feel comfortable sharing!...

Which lifestyle change has had the most positive impact on managing your blood cancer?

1. Regular exercise and physical activity 2. Adopting a balanced and nutritious diet 3. Prioritizing stress-reducing activities like meditation or yoga Something else? Share what has been most impactful for...

T cell PLL

Diagnosed in July of this year with a very rare form of leukemia. I am in the inactive stage, called wait and watch. I am closely monitored with blood work...

What is ONE Thing Gets You Through The Challenges Every Day?

Blood-Cancer comes with a lot of challenges. I have found that focusing on one thing helps me cope on a daily basis. For me that one thing is being in...

Nk T Cell Non Hodgkins Lymphoma unlikely patient

Hi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old...

MDS Watch and Wait

Hi everyone! I am on Watch and Wait for MDS. My MDS diagnosis is Refractory Anemia with Multi Lineage Dysplasia (Red blood cells and Platelets). I've been on Watch and...

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