MDS Watch and WaitHi everyone! I am on Watch and Wait for MDS. My MDS diagnosis is Refractory Anemia with Multi Lineage Dysplasia (Red blood cells and Platelets). I've been on Watch and...Reactions0reactionsComments30 repliesMDS
mds-mld-lowI have had 6 rounds of vidaza and have 7th round of vidaza scheduled for June 6th --question one and all - my blood ratios are moving to right direction...Reactions0reactionsComments11 repliesFatigueTreatmentMDS
Financial assistance I'm back for more advice.. I'm in day 72 after my auto stem cell procedure. In my work field (working with individuals with idd) I'm not sure when I can...Reactions0reactionsComments3 repliesCostCopingAwareness
Fulfilling A Bucket ListWhat is that number one on your bucket list of things to do and see? I've been around but Brazil was a must see on my list to visit before...Reactions0reactionsComments11 repliesTravelCoping
Medical GaslightingHave you ever been gaslit by your doctor or healthcare team? How did it make you feel and what did you do about it?...Reactions0reactionsComments0 repliesTips & Advice
Anyone looking for support groups around blood cancer?hi all i have found it VERY hard to find virtual support groups for people with blood cancer. does anyone know of any online groups happening?...Reactions0reactionsComments8 repliesAwarenessLeukemiaParents and Caregivers
Anyone looking for support groups around blood cancer? join hereHi All I have created a support group after struggling to find some online- it is on reddit and it open to anyone going through blood cancer (or any other...Reactions0reactionsComments2 repliesMental HealthLymphomaLeukemia
How did you deal with hair loss? Losing your hair during treatment can be a difficult process. Some people decide to take control and cut it themselves before it starts to go. Others try new wigs or...Reactions0reactionsComments20 repliesSide Effects
How do you respond to unwanted advice? As a person living with cancer, you may receive unsolicited and even unwanted advice from friends, family, and strangers. It might sound like no big deal to some, but it...Reactions0reactionsComments4 repliesFriends & FamilyTips & Advice
Daily multiple vitamins I asked my Oncologist yesterday about adding a daily multiple vitamin to my daily pill regimen. (I had taken them before my cancer showed up, I was just out). He...Reactions0reactionsComments3 repliesMultiple Myeloma