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Read conversations, start a discussion, and connect with others about blood cancer.

Your Fitness Go-To...

Hope the year is starting well for you. Many people hop on the exercise bandwagon in the first part of the year. What is your favorite exercise? For me, I...

I have Essential Thrombocythemia.

I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of people with ET get PH. Has anyone else...

Will you take our In America survey and help others understand the impact of blood cancer?

The In America survey is now closed. We are conducting our In America survey to learn more about the challenges of living with blood cancer. By taking our survey, you...

Chemo med change

My platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I just changed to a new pharmacy this year...

How do I start to find answers?

Hi, I'm 65 and have been sick for a very long time but the last few year especially the last year I started really going down hill with fatigue, brain...

New Year New Consultation

Happy New Year! Are you ready to do things differently regarding the patient and doctor experience this year? If you could what changes in communication would you like to correct...

AML with flt-3

If this is your mutation, tell me how you’re doing. How long since diagnosis, what treatments you’ve had, how you’re coping and what symptoms you do you deal with now?...

Healthy, clean eating

Healthy eating…plant based, vegan, organic everything. Eat your blood type. You can google your blood type and it will tell you what foods are healthy for you to eat and...

Wins and Interruptions

You never know... sometimes it flows the way it's supposed to and other times, there are a few hiccups between the stops. What was 1 win towards your health in...

Access to clinical trials from oversea

Hi everyone, I have a question re clinical trials. My mom is 59 y.o. with MLL-r AML. She is now 15 months after allo-HSCT and had molecular relapse (dPCR positive)...

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