stop dehyrdationHi I suffer dehydration, I hope someone will make a mouth plate attached to a tube that sprays water in my mouth when I am awake and sleeping, I am...Reactions0reactionsComments2 repliesDiet & Nutrition
RelapseHave you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...Reactions0reactionsComments7 repliesCopingTreatmentDiagnosis
Treatment WonderHow often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions0reactionsComments3 repliesCopingResearch & Clinical TrialsTreatment
Your Fitness Go-To...Hope the year is starting well for you. Many people hop on the exercise bandwagon in the first part of the year. What is your favorite exercise? For me, I...Reactions0reactionsComments6 repliesCopingExerciseTips & Advice
I have Essential Thrombocythemia.I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of people with ET get PH. Has anyone else...Reactions0reactionsComments2 repliesDiagnosis
Will you take our In America survey and help others understand the impact of blood cancer?The In America survey is now closed. We are conducting our In America survey to learn more about the challenges of living with blood cancer. By taking our survey, you...Reactions0reactionsComments0 replies
Chemo med changeMy platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I just changed to a new pharmacy this year...Reactions0reactionsComments2 repliesTreatmentAwareness
How do I start to find answers?Hi, I'm 65 and have been sick for a very long time but the last few year especially the last year I started really going down hill with fatigue, brain...Reactions0reactionsComments13 replies
New Year New ConsultationHappy New Year! Are you ready to do things differently regarding the patient and doctor experience this year? If you could what changes in communication would you like to correct...Reactions0reactionsComments2 repliesCopingHealthcare TeamTips & Advice
AML with flt-3If this is your mutation, tell me how you’re doing. How long since diagnosis, what treatments you’ve had, how you’re coping and what symptoms you do you deal with now?...Reactions0reactionsComments0 repliesDiagnosisCoping