Polycythemia VeraHi. I was diagnosed with PV in 2017. I am on Hydroxvurea. 500 MG, 7 days per week. I have frequent phlebotomies but after the last phlebotomy, I got really...Reactions 0 reactions Comments1 repliesDiagnosisSymptoms
FeaturedChannelingWhat is some of your go-to's when channeling positive energy with everything going on with your health? For me: Laughter, Limiting Social Media, and Food :)...Reactions 0 reactions Comments12 repliesCopingTips & Advice
Blood-cancer.com award nomineeFor the second year in a row now, I've been one of the nominees to receive an award at Social Health Network/Health-Union.com. this is such an honor for me you...Reactions 0 reactions Comments5 repliesAwareness
What to do when treatment has stopped workingI was diagnosed with primary myelofibrosis in 2022 at age 79. I started treatment with weekly injections to stimulate my bone marrow to produce more red blood cells. It worked...Reactions 0 reactions Comments7 repliesCostTreatment
What is or was your diagnosis?When finding out you were diagnosed with cancer, what is or was your complete diagnosis called?...Reactions 0 reactions Comments13 repliesAwarenessDiagnosis
Seeking 2nd OpinionsEver wondered about the best tactics in trying to have another pair of eyes on your health? Do you feel nervous going about this without hurting the other doctor's feelings?...Reactions 0 reactions Comments4 repliesDiagnosisNewly DiagnosedTips & Advice
SECOND BMBHello, Some of my lab results are showing an adverse trend. My doc wants me to have a second BMB to rule out the possibility of a mutation of my...Reactions 0 reactions Comments14 replies
How do you feel when other people downplay blood cancer?Why do you think they do it? How do you cope with it?...Reactions 0 reactions Comments30 repliesCoping
Fear of Second CancerI had a scare a few weeks back that luckily turned out to be not what we thought. I have to admit the fear of second cancer struck me off...Reactions 0 reactions Comments40 repliesDiagnosisTips & AdviceCoping
FeaturedTime since diagnosisHow long has it been since you received a blood cancer diagnosis?...Reactions 0 reactions Comments54 replies