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Nk T Cell Non Hodgkins Lymphoma unlikely patient

Hi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old very white female.
When my diagnosis was finally reached (after many hospital stays and procedures and thanks to a brilliant doctor at City of Hope) I was told they had to call a university in Asia to get help on my treatment plan.
I'm 5 years in remission currently and dealing with the chaos that cancer left behind. I'm glad to be here but I don't know where I kind of stand...in....life

  1. ALC NH Lymphoma with B CELL here, so not exactly the same but still a mouthful. My cancer left a lot in it's wake as well, include a divorce that started the day I got home from the hospital. It was quite a thing, and I will still be paying off the cancer bills until next year! Fortunately I am in remission, thankfully, but it did change everything for good. You are not alone in that. Keep on keepin' on, DPM

    1. Glad you found us here! My name is Anthony and I help manage this community. I'll look out for others who mention your specific diagnosis and send them to this thread. In the meantime, I hope you find some support and connection in other threads here. If there is anything else you're looking for please feel free to reach out!
      -Anthony (Team Member)

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