You Only Live Once...I’ve had the opportunity to take part in some amazing experiences while and after being diagnosed with multiple myeloma a decade plus...reactions10comments
MDS Patient August 2023...I was diagnosed with MDS and my worst symptoms are horrible skin itching and burning. I have been reading blogs about this...reactions4repliesTips & AdviceTreatmentMDS
November is National Family Caregivers Month...As a mom, you are a natural caregiver. From the moment you realize a new life is on the way, to seeing...reactionscomments
When Everyone Else Tells You How To Cancer...You are a cancer warrior! You are a survivor! You are a fighter! You are a one-eyed-one-horned-flying-purple-people-eater! When you have blood cancer...reactions12comments
Cancer is Fear, But It’s Not All Bad...Well it is that time of year again. No, not the Holiday season - it’s not quite time yet! Even though I...reactionscomments
Frustration...First and foremost Happy Halloween! I remember coming across a quote that said "No one prepared me for surviving cancer. You know...reactions14comments
What a Pain to Get Pain Medication...The other day, I was walking down the street, choking back tears, stopping and starting and stopping again. I was trying to...reactionscomments
How do you make sure you are heard by your doctor?...Living with blood cancer can be challenging, and effective communication with your healthcare team is crucial to receiving the best care possible...reactions30replies
Why ? ...Why didn’t my Dr. Say anything about a bone marrow transplant? I’m only 71 in great shape. It’s a blood test every...reactions3repliesTreatment
FeaturedConnect, Support, and Share Experiences with fellow MDS Warriors...Living with Myelodysplastic Syndromes can be challenging, but you're not alone on this journey. We're here to listen and support each other...reactions42repliesTips & AdviceCopingMDS
What Blood Cancer Teaches You...Getting the news I had blood cancer was a bit of a shock. And while I did not know it at the...reactions2comments
Breath as a Tool to Aid Healing...Breathing...it’s something we all do without even thinking. We trust that our breath will happen naturally, and without thinking, we accept the...reactionscomments
A New Kind Of Guilt...I had a very tricky week recently. To make it selfishly about me, rather than the parents it happened to. A funeral...reactions4comments
Pharmaceutical Patient Assistance Limitations...Hi, all - Over the past ten years, I have been fortunate that pharmaceutical companies have allowed me to enroll in patient...reactions3repliesCostLeukemiaTips & Advice
Introducing Lieutenant Harper...Recently, I had the pleasure and honor of watching my daughter Crystal graduate from Officer Training School for the United States Air...reactionscomments
I Need Help/Does anyone have expierence with MPAL?...Hello dear members, dear parents, I feel totally helpless. I hope to find help here. My 4 year old son Mica was...reactions2repliesDiagnosisLeukemia
How To Support Someone Living With Blood Cancer...📣 Calling All Blood Cancer Warriors! 🦸♀️ Your experiences matter, and your voice deserves to be heard. Living with blood cancer can...reactions38repliesFriends & FamilyTips & AdviceParents and Caregivers
October Stirs Up Memories of Blood Cancer Diagnosis...When October comes, many people associate it with pumpkins, beautiful foliage, or even football games. For me, October is significant for other...reactions3comments
Navigating 'But You Don't Look Sick?'...Living with a blood cancer diagnosis often means facing the challenge of an invisible illness, where outward appearances can be deceiving. It's...reactions59repliesFriends & FamilyTips & Advice
Fear, Anger, and Someone Else's Scanxiety...Since I was diagnosed with follicular lymphoma 15 years ago, I’ve had a bunch of scans. And of course, with every scan...reactions5comments
