Pharmaceutical Patient Assistance Limitations...Hi, all - Over the past ten years, I have been fortunate that pharmaceutical companies have allowed me to enroll in patient assistance programs to have financial access to my...reactions3repliesLeukemiaCostTips & Advice
Introducing Lieutenant Harper...Recently, I had the pleasure and honor of watching my daughter Crystal graduate from Officer Training School for the United States Air Force. It was such a proud moment, but...reactionscomments
I Need Help/Does anyone have expierence with MPAL?...Hello dear members, dear parents, I feel totally helpless. I hope to find help here. My 4 year old son Mica was diagnosed with leukemia (AML) in December 2021. He...reactions2repliesDiagnosisLeukemia
How To Support Someone Living With Blood Cancer...📣 Calling All Blood Cancer Warriors! 🦸♀️ Your experiences matter, and your voice deserves to be heard. Living with blood cancer can be a challenging journey, and we want to...reactions38repliesTips & AdviceFriends & FamilyParents and Caregivers
October Stirs Up Memories of Blood Cancer Diagnosis...When October comes, many people associate it with pumpkins, beautiful foliage, or even football games. For me, October is significant for other reasons. No, it is not because it is...reactions3comments
Navigating 'But You Don't Look Sick?'...Living with a blood cancer diagnosis often means facing the challenge of an invisible illness, where outward appearances can be deceiving. It's a situation many of us have encountered, whether...reactions59repliesFriends & FamilyTips & Advice
Fear, Anger, and Someone Else's Scanxiety...Since I was diagnosed with follicular lymphoma 15 years ago, I’ve had a bunch of scans. And of course, with every scan came scanxiety. Every time. But a few weeks...reactions5comments
Am I being ghosted or am I over sensitive ...Hi. I was diagnosed with CLL in late January. Told family and some friends (some of whom I've known for 35 years) and after initial reactions, didn't hear from these...reactions8repliesIntimacy & RelationshipsMental Health
Trying to Live Like Before the Diagnosis...Now what they don’t tell you is that if you do make it to remission of your blood cancer, with maintenance or without maintenance, the likelihood of other hiccups always...reactions4comments
HAIRY CELL LEUKEMIA🫶💪 warrior!...Hey 👋 👋 My name is Jimmie Lou and I was diagnosed last year of May 2022! It felt really hard knocks because my dad just passed away a month...reactions1comment
JAK2 Mutation in Me...My bone marrow-blood cancer called primary myelofibrosis (MF) started on a festive Cinco de Mayo, 2015. It was a normal work day for me, and all of a sudden, without...reactions4comments
Isolation and Blood Cancer...In the book of Genesis 2:18, we find a quote saying, “It is not good that man should be alone.” A few centuries later John Donne in his poem reminds us...reactions4comments
Should I Keep My Blood Cancer a Secret?...I was at a Bunco fundraiser when a lady at my table said her husband had been recently diagnosed with multiple myeloma. I replied that I had something similar called...reactionscomments
Second Opinions...Have you ever sought a second opinion about your diagnosis or treatment? What led you to make that decision, and how did it impact your healthcare journey?...reactions13repliesTips & AdviceNewly DiagnosedHealthcare Team
Promoting Your Wellness By Forgiving Others...As blood cancer survivors our priority is to promote wellness in every aspect of our lives. I recently read several articles suggesting that forgiving and forgetting can improve our health...reactionscomments
Preparing For Chemo - A Guide...Chemo. It’s a scary word, almost as scary as “cancer,” or “unauthorized charge on your credit card.” Chemo, though, is a necessary part of blood cancer treatment and after years...reactions6comments
After chemotherapy ...I had CLL Was treated with chemotherapy pills at home 2 / day since February 2023 and still going on , in addition to chemotherapy in the hospital, I finished...reactions3replies
Active 8 days agoTips for Managing Fatigue...Cancer-related fatigue is a common challenge. If you've faced it, we'd like to hear your tips: -How do you manage cancer-related fatigue? -Share strategies or resources that have helped. -Any...reactions115repliesSide EffectsTips & AdviceFatigue
Fasting for Prevention of Relapse...In December 2007 I was diagnosed with hairy cell leukemia, a chronic and often repeating blood cancer. I have had 2 relapses and have undergone treatment each time since the...reactions5comments
Climbing Obstacles...Coping with blood cancer is not easy, and many may find it just another "thing" to overcome. How have you taken this diagnosis and turned around this obstacle? Or are...reactions6repliesCopingMultiple MyelomaNewly Diagnosed
