Current Status: Tired But Trying...Because of a hectic work schedule and medical problems, I recently took a hiatus from social media. I left a pinned "status" on Facebook. I don’t watch the TV show...Reactions0reactionsComments3 comments
CLL Forum...Welcome to our CLL Community Forum – a Safe Haven for Sharing, Learning, and Connecting. Whether you're a patient, caregiver, or simply seeking information, join us to discuss experiences, treatment...Reactions0reactionsComments6 repliesTreatmentTips & AdviceAwareness
The Mental Fatigue of Cancer Is Real...Fatigue. It’s always a popular topic when talking about blood cancer. Why? Because we all experience it, sometimes for years after we are in remission, and doctors rarely talk about...Reactions0reactionsComments5 comments
My Bones...When I was diagnosed with multiple myeloma in 2011, I was severely anemic and my kidneys were near failure. These are two of several possible symptoms that are visible with...Reactions0reactionsComments5 comments
Exercise Buster 1...There was a recent study on hypertension, and how exercise can help lower the systolic reading. The one effective call-out was using isometric training such as a wall squat to...Reactions0reactionsComments0 repliesExerciseTips & Advice
Focusing On the Good...Well, I’m currently in the 2-week wait for my leukaemic results, which seems to be coming around faster and faster. I was down to 8-week checks but it’s gone back...Reactions0reactionsComments1 comments
Preparing for a Complete Blood Count..."She's difficult!" I overheard the phlebotomist say while looking at my arm. WHAT?! I thought. I just said, "Good morning," when I sat down. That's all I said. "She doesn't...Reactions0reactionsComments0 comments
Things I Have Learned about Hairy Cell Leukemia...When I was first diagnosed with hairy cell leukemia in 2007, I honestly didn’t know anything about blood cancer, let alone this very specific and rare type. And since it...Reactions0reactionsComments0 comments
Chronic Lymphocytic Leukemia: When Blood Cancer is Uncommon...They diagnosed me with chronic lymphocytic leukemia at age 37. I was barely familiar with leukemia. I certainly had never heard of this form of the disease. My initial thought...Reactions0reactionsComments7 comments
What Does Finding a Community That Understands Mean to You?...Calling all those living with blood cancer: We'd love to hear your thoughts on the importance of finding a blood cancer community. How has connecting with others who understand your...Reactions0reactionsComments26 repliesTips & AdviceFriends & FamilyAwareness
Cancer no way!...Hi,my name is Donna, on June 19 2022. I was diagnosed with stage 4 cll and sll! I was in the hospital for 45 days 21 blood transfusions 18 platelet...Reactions0reactionsComments4 comments
My Blood Cancer Story: Polycythemia Vera (PV)...Aloha, my name is Maka. I am a 64 year old female who was diagnosed with PV in April 2020, just when the Panademic started affecting people's lives. I was...Reactions0reactionsComments1 comments
Myelodysplastic Syndromes – I Am Not Making This Up!...Do you remember how "The Tonight Show" host Jay Leno would preface a funny story by saying, "I am not making this up!"? Although it isn't funny, that's how I...Reactions0reactionsComments5 comments
Travel Musts with Blood Cancer...For those that can tolerate travel or have no choice for one reason or another; let's talk about the obvious. There are indeed things to truly consider when traveling especially...Reactions0reactionsComments2 repliesTips & AdviceAwareness
Cml coping ...Hi im Laura I was diagnosed 8 months ago and have been on chemo every since. I am not coping very well. I do not have a very good support...Reactions0reactionsComments5 repliesCoping
My Blood Cancer Pet Peeve...I want to share my blood cancer pet peeve with you. A pet peeve is one of those little nagging things that really aren’t all that important, but have a...Reactions0reactionsComments2 comments
My Many Jobs...Being chronically ill with blood cancer for so many years has taught me that as an employee I can't always be super reliable. Years of infections, surgeries, cancer, and cancer...Reactions0reactionsComments5 comments
How do you feel about your health care team?...Do you feel supported and heard by your care team? Do they give you the time to ask questions and address concerns? What have they done to make you feel...Reactions0reactionsComments14 repliesHealthcare TeamTips & AdviceAwareness
Eating healthier. Physical therapy...I can't do therapy every day of the week. Therapist should be taught that for Multiple Myeloma people the energy is not there . I think three days a week...Reactions0reactionsComments1 repliesMedical MarijuanaMultiple Myeloma
The Rest of My Diagnosis Story...After I was finally diagnosed with a blood disorder, possibly leukemia, I had two appointments with my first hematologist. She let me know that she'd set me up with a...Reactions0reactionsComments0 comments
