T-PLL...I started with CLL and was diagnosed with T-PLL A year ago January I started Campath and was in remission after 8 weeks. Still in remission. I’m 78 years old....reactions2repliesTreatment
Blood Cancer Awareness Month 2023: Survivorship...This month we are recognizing Blood Cancer Awareness Month, celebrating the lives of everyone in this community and the memories of those who are no longer with us. Survivorship is...reactionscomments
FeaturedWhat Does Survivorship Mean to You?...In this forum discussion, we invite you to share your thoughts and personal experiences on the theme of survivorship. Survivorship is not just about surviving a diagnosis but also about...reactions254repliesAwarenessParents and CaregiversTips & Advice
Blood Cancer Awareness Month Giveaway 2023- CLOSED...This giveaway is now closed! Thank you for participating! We are honoring Blood Cancer Awareness Month this year, themed "Survivorship," with a special giveaway. The giveaway starts on September 1...reactions12comments
Active Thoughts...The mind can go a mile a minute with so much to do, and for many, it feels like so little time. What active thoughts have you had in moving...reactions5repliesMultiple MyelomaCoping
Current Status: Tired But Trying...Because of a hectic work schedule and medical problems, I recently took a hiatus from social media. I left a pinned "status" on Facebook. I don’t watch the TV show...reactions3comments
CLL Forum...Welcome to our CLL Community Forum – a Safe Haven for Sharing, Learning, and Connecting. Whether you're a patient, caregiver, or simply seeking information, join us to discuss experiences, treatment...reactions6repliesTreatmentTips & AdviceAwareness
The Mental Fatigue of Cancer Is Real...Fatigue. It’s always a popular topic when talking about blood cancer. Why? Because we all experience it, sometimes for years after we are in remission, and doctors rarely talk about...reactions5comments
My Bones...When I was diagnosed with multiple myeloma in 2011, I was severely anemic and my kidneys were near failure. These are two of several possible symptoms that are visible with...reactions5comments
Exercise Buster 1...There was a recent study on hypertension, and how exercise can help lower the systolic reading. The one effective call-out was using isometric training such as a wall squat to...reactionsrepliesExerciseTips & Advice
Focusing On the Good...Well, I’m currently in the 2-week wait for my leukaemic results, which seems to be coming around faster and faster. I was down to 8-week checks but it’s gone back...reactions1comment
Preparing for a Complete Blood Count..."She's difficult!" I overheard the phlebotomist say while looking at my arm. WHAT?! I thought. I just said, "Good morning," when I sat down. That's all I said. "She doesn't...reactionscomments
Things I Have Learned about Hairy Cell Leukemia...When I was first diagnosed with hairy cell leukemia in 2007, I honestly didn’t know anything about blood cancer, let alone this very specific and rare type. And since it...reactionscomments
Chronic Lymphocytic Leukemia: When Blood Cancer is Uncommon...They diagnosed me with chronic lymphocytic leukemia at age 37. I was barely familiar with leukemia. I certainly had never heard of this form of the disease. My initial thought...reactions7comments
What Does Finding a Community That Understands Mean to You?...Calling all those living with blood cancer: We'd love to hear your thoughts on the importance of finding a blood cancer community. How has connecting with others who understand your...reactions26repliesTips & AdviceFriends & FamilyAwareness
Cancer no way!...Hi,my name is Donna, on June 19 2022. I was diagnosed with stage 4 cll and sll! I was in the hospital for 45 days 21 blood transfusions 18 platelet...reactions4comments
My Blood Cancer Story: Polycythemia Vera (PV)...Aloha, my name is Maka. I am a 64 year old female who was diagnosed with PV in April 2020, just when the Panademic started affecting people's lives. I was...reactions1comment
Myelodysplastic Syndromes – I Am Not Making This Up!...Do you remember how "The Tonight Show" host Jay Leno would preface a funny story by saying, "I am not making this up!"? Although it isn't funny, that's how I...reactions5comments
Travel Musts with Blood Cancer...For those that can tolerate travel or have no choice for one reason or another; let's talk about the obvious. There are indeed things to truly consider when traveling especially...reactions2repliesTips & AdviceAwareness
Cml coping ...Hi im Laura I was diagnosed 8 months ago and have been on chemo every since. I am not coping very well. I do not have a very good support...reactions5repliesCoping
