An Interview With My Caretaker...During my blood cancer journey, I had one main person who became my caretaker, his name is Jordan. We started off as friends, then I made the move to be...Reactions0reactionsComments4 comments
What Type of Blood Cancer Are You Diagnosed With...New here? Been with us since the beginning? Introduce yourself below and share a little about your experience as someone living with blood cancer....Reactions0reactionsComments340 repliesTips & AdviceCopingAwareness
Enough Already...When I was a kid, before the internet, I loved getting novelty catalogs. I'd scour them for hours on end, planning for the next item I'd buy after saving enough...Reactions0reactionsComments2 comments
Chemo, Treatments and Side Effects: The Stuff they FORGOT to Tell You!...All of us with blood cancer don't necessarily go through chemotherapy. But most of us go through some form of treatment... We are familiar with the "usual" side effects, but...Reactions0reactionsComments33 repliesSide EffectsTreatment
How Has Faith Helped You to Cope?...I have CLL and I can't imagine getting through this without my faith in God. I will say that going through this journey has done two incredible things for me...Reactions0reactionsComments16 repliesCoping
2 Years Chemo Free...I can’t quite believe it. In fact, the last 2 years had a lot of ‘I can’t quite believe it’ in it. A permanent relationship (probably the biggest surprise to...Reactions0reactionsComments0 comments
Thankful...What are you most thankful for today? I'm thankful to have opened my eyes this morning and started the day fresh with whatever comes with it....Reactions0reactionsComments11 repliesTips & AdviceCoping
Leukemia and Lymphoma Society...I recently had the pleasure of talking to Louis J. DeGennaro, Past President & CEO, The Leukemia & Lymphoma Society (LLS). He shared a lot of helpful information regarding LLS...Reactions0reactionsComments6 comments
Coping Strategies and Lifestyle Changes: Sharing Experiences and Support...This space serves as a supportive community where we can come together to share our experiences, insights, and challenges related to blood cancer. Whether you have been recently diagnosed or...Reactions0reactionsComments4 repliesCopingTips & AdviceDiagnosis
Truth And Blood Cancer...You can do and say pretty much anything you want, but over time, the truth always surfaces. No matter how you look at it truth owns every part of our lives...Reactions0reactionsComments7 comments
What organizations and services have helped you?...What organizations and services have you used and found you helpful to manage your life with blood cancer?...Reactions0reactionsComments7 repliesTips & Advice
Removal of permanent eyebrows tattoo ...I wondering if my immune system is up to removing ink from eyebrow tattoos? I have CML since 2019 on imatinib daily very good response to treatment...Reactions0reactionsComments1 repliesTips & Advice
Becoming an Empty Nester With Blood Cancer...Recently, my son graduated from high school. My baby, the youngest of my three children, will leave for college in a few months. I will be staying behind, contemplating my...Reactions0reactionsComments12 comments
Is it time for the outdoors?...Well, here we have it, it's year 3 of the unprecedented COVID pandemic, and people are back to being comfortable out and about. Summer is officially here and the beaches...Reactions0reactionsComments10 repliesCopingAwareness
The Places You’ll Go...Congratulations! Today is your day. You’re off to Great Places. You’re off and away…Dr. Seuss "Wow! I’m going to New York City to take part in a blood cancer storytelling...Reactions0reactionsComments8 comments
Watching My Hemoglobin: I Wish I Were a "10" Again!...October 25 is MDS World Awareness Day, an opportunity to commemorate and show support for those living with myelodysplastic syndromes. Bo Derek and Dudley Moore starred in the 1979 romantic...Reactions0reactionsComments3 comments
Dealing with Comparisons...How and have you dealt with anyone comparing your blood cancer with something else...perhaps less life-threatening? I recall explaining multiple myeloma, but one individual had the audacity to compare it...Reactions0reactionsComments17 repliesCopingAwarenessMultiple Myeloma
Unexpected Superheroes!...Typically, when someone hears superhero immediately most of the world starts naming Superman, wonder woman, Batman, and so on. My superhero is an everyday person with the superpowers of compassion...Reactions0reactionsComments11 comments
A New Day...I saw the sunrise today. Every time I see this beautiful phenomenon of nature, I think back to when I was first diagnosed with blood cancer and the initial uncertainty...Reactions0reactionsComments13 comments
