Maneuvering the Potholes of Blood Cancer...Having blood cancer is like driving down a road full of potholes. First of all, you have to make sure all these dips and jostles along the way do not...reactions8comments
Vidaza treatment vs bone marrow transplant ...I’m 56y/o male diagnosed with MDS this past April. I just finished my 3rd round treatment.I’m considered high risk. The treatment I’m doing now is Vidaza. My Dr. said it’s...reactions3repliesDiagnosis
Abandoning Your Superhero...The superheroes I enjoyed in youth were Adam West T.V. "Batman", William Katt’s “The Greatest American Hero”, and finally the one and only Lynda Carter in "Wonder Woman". I remember...reactions1comment
An Interview With My Caretaker...During my blood cancer journey, I had one main person who became my caretaker, his name is Jordan. We started off as friends, then I made the move to be...reactions4comments
What Type of Blood Cancer Are You Diagnosed With...New here? Been with us since the beginning? Introduce yourself below and share a little about your experience as someone living with blood cancer....reactions361repliesTips & AdviceCopingAwareness
Enough Already...When I was a kid, before the internet, I loved getting novelty catalogs. I'd scour them for hours on end, planning for the next item I'd buy after saving enough...reactions2comments
Chemo, Treatments and Side Effects: The Stuff they FORGOT to Tell You!...All of us with blood cancer don't necessarily go through chemotherapy. But most of us go through some form of treatment... We are familiar with the "usual" side effects, but...reactions33repliesSide EffectsTreatment
How Has Faith Helped You to Cope?...I have CLL and I can't imagine getting through this without my faith in God. I will say that going through this journey has done two incredible things for me...reactions16repliesCoping
2 Years Chemo Free...I can’t quite believe it. In fact, the last 2 years had a lot of ‘I can’t quite believe it’ in it. A permanent relationship (probably the biggest surprise to...reactionscomments
Thankful...What are you most thankful for today? I'm thankful to have opened my eyes this morning and started the day fresh with whatever comes with it....reactions11repliesTips & AdviceCoping
Leukemia and Lymphoma Society...I recently had the pleasure of talking to Louis J. DeGennaro, Past President & CEO, The Leukemia & Lymphoma Society (LLS). He shared a lot of helpful information regarding LLS...reactions6comments
Coping Strategies and Lifestyle Changes: Sharing Experiences and Support...This space serves as a supportive community where we can come together to share our experiences, insights, and challenges related to blood cancer. Whether you have been recently diagnosed or...reactions4repliesCopingTips & AdviceDiagnosis
Truth And Blood Cancer...You can do and say pretty much anything you want, but over time, the truth always surfaces. No matter how you look at it truth owns every part of our lives...reactions7comments
What organizations and services have helped you?...What organizations and services have you used and found you helpful to manage your life with blood cancer?...reactions7repliesTips & Advice
Removal of permanent eyebrows tattoo ...I wondering if my immune system is up to removing ink from eyebrow tattoos? I have CML since 2019 on imatinib daily very good response to treatment...reactions1replyTips & Advice
Becoming an Empty Nester With Blood Cancer...Recently, my son graduated from high school. My baby, the youngest of my three children, will leave for college in a few months. I will be staying behind, contemplating my...reactions12comments
Is it time for the outdoors?...Well, here we have it, it's year 3 of the unprecedented COVID pandemic, and people are back to being comfortable out and about. Summer is officially here and the beaches...reactions10repliesCopingAwareness
The Places You’ll Go...Congratulations! Today is your day. You’re off to Great Places. You’re off and away…Dr. Seuss "Wow! I’m going to New York City to take part in a blood cancer storytelling...reactions8comments
Watching My Hemoglobin: I Wish I Were a "10" Again!...October 25 is MDS World Awareness Day, an opportunity to commemorate and show support for those living with myelodysplastic syndromes. Bo Derek and Dudley Moore starred in the 1979 romantic...reactions3comments
