How I Got my (Tennis) Game Back...Despite my best efforts to coax my feet into moving and to make a good contact with the ball, today I played some of my worst tennis in years. But...Reactions0reactionsComments8 comments
Do you think prevention of blood cancer is possible?...If you could tell your loved ones something to prevent them from being diagnosed with a blood cancer, what would it be?...Reactions0reactionsComments4 repliesAwarenessFriends & FamilyTips & Advice
What Cancer Survivor Day Means to Me...A person living with cancer can be considered a cancer survivor. When diagnosed with blood cancer, non-Hodgkin lymphoma in 2010, I was overwhelmed and did not think I would survive...Reactions0reactionsComments5 comments
Cancer of the blood ...I was recently diagnosed with MSD leukemia..I start chemo june 6th...Reactions0reactionsComments2 replies
You Are a Survivor!...One of the first terms I heard when I was first diagnosed with blood cancer was about "Survivorship." It doesn't take long before you are very aware that whenever you...Reactions0reactionsComments41 comments
Living Well with Cancer...Disclaimer: What follows is just what has worked so well for me that it has taken me from essentially being bed-ridden for the better part of nine weeks (including four...Reactions0reactionsComments2 comments
Why People Treat Those With Cancer Badly...Lately a lot of people have been talking about how people treat you when you have blood cancer. Family, friends, at the doctor’s – it doesn’t matter where. Suddenly, things...Reactions0reactionsComments22 comments
What about when you are ghosted by the person with Cancer?...I have a newish friendship of 2 months with a man. We just clicked on a natural deeper connection and felt like we had known each other for years. We...Reactions0reactionsComments3 repliesFriends & FamilyCopingDiagnosis
A Hermits Life...I'm in my 3rd year of stage 3 CLL. My husband died of lung cancer the year before I was diagnosed. Having seen what he went thru I decided to...Reactions0reactionsComments10 comments
Being Inquisitive Means Hope...The pressing words stating your body will no longer work the way it used to can scare the Be-Jesus out of many, and why wouldn’t it? This blood cancer journey...Reactions0reactionsComments0 comments
Clinical Trials Conversations...I know a lot of people hit a wall as to how to bring the conversation up with their medical team on other options, besides the ones they may suggest...Reactions0reactionsComments6 repliesAwarenessHealthcare TeamResearch & Clinical Trials
If you could give yourself one compliment regarding handling your blood cancer, what would it be?...Sometimes we focus on the hard parts of living with cancer that we forget to compliment ourselves for all the amazing things we do. Can you be proud and share...Reactions0reactionsComments19 repliesCopingAwarenessTips & Advice
Polycythemia Vera...Hi. I was diagnosed with PV in 2017. I am on Hydroxvurea. 500 MG, 7 days per week. I have frequent phlebotomies but after the last phlebotomy, I got really...Reactions0reactionsComments1 repliesDiagnosisSymptoms
Play!...I just recently saw a TikTok video about a group of friends that were at a beach and decided to play the children’s game Duck-Duck-Goose. The caption read, “Groups that...Reactions0reactionsComments12 comments
Does Having Blood Cancer Make Us Overly Sensitive?...Does having blood cancer make me overly sensitive to what others say? Please let me know if you feel that way too. The other day I was having an evaluation...Reactions0reactionsComments14 comments
Common Misconceptions About Cancer Patients...A person's experience with blood cancer is unique to them. In my 7 years of survivorship and working in the cancer space, I have heard about every misconception you can...Reactions0reactionsComments11 comments
What to do when treatment has stopped working...I was diagnosed with primary myelofibrosis in 2022 at age 79. I started treatment with weekly injections to stimulate my bone marrow to produce more red blood cells. It worked...Reactions0reactionsComments7 repliesCostTreatment
Summer Outlooks...Well, Summer is almost here. I don't know about you but I'm looking forward to summer and positive vibes. We usually throw massive BBQ's but of course, during this pandemic...Reactions0reactionsComments14 repliesFriends & FamilyCopingTips & Advice
Running To Verses Running From...Ever feel like you are running from blood cancer and it keeps catching up? Since being diagnosed with leukemia in 2011 I have found myself outmaneuvering, outthinking (if that’s a...Reactions0reactionsComments7 comments
Almost 12 Bleeping Years...Early in my myeloma journey (nightmare, adventure, health scare, eye opener, what have you), my specialist said to me that the goal was to have me live long enough that...Reactions0reactionsComments12 comments
