I have Essential Thrombocythemia....I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of...reactions3repliesDiagnosis
Chemo med change...My platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I...reactions2repliesTreatmentAwareness
Considerations When Sharing Your Cancer Diagnosis...When or if to share your blood cancer diagnosis is an extremely personal decision, and there is no wrong answer for patients...reactions6comments
Your Fitness Go-To......Hope the year is starting well for you. Many people hop on the exercise bandwagon in the first part of the year...reactions6repliesCopingExerciseTips & Advice
Tips to Managing Health Insurance With Blood Cancer...I used to think that all insurance plans were the same. One size fits all. Just hand them your card, and you...reactions4comments
Trials of Remission...The term remission is a term that brings comfort and relief for many, and there are those who also feel “What’s the...reactions2comments
Word of the Year and the Impact on My Cancer Journey...Every end of year, I come up with a word for the new year. For me, it seems to be a better...reactions8comments
Ray Hartjen...Ray Hartjen is a writer, musician, marketer, and cancer patient advocate living in southern California. Throughout his professional career spanning five decades...
Remove the Mask: Talking About Your Blood Cancer...It's okay not to always be strong. It's fine to let others and, more importantly, yourself, know that living with blood cancer...reactions1comment
While You’re At It Doc...When I was first diagnosed with blood cancer my oncologist arranged for an infusion nurse to stop in to see me a...reactions11comments
Now Enrolling-Smartphone Wellness Study for Blood Cancer Patients!...Mays Cancer Center is seeking US-based adult blood cancer patients with poor sleep to participate in a 20-week study to test a...reactionsrepliesResearch & Clinical TrialsLeukemiaMultiple Myeloma
CLL Changed My Life...My name is Lynn. I’m 71 and was diagnosed with Chronic Lymphocytic Leukemia (CLL) in May of 2021. I found my life...reactions14comments
Multiple Myeloma and Side Effects: Where Do I Go From Here?...Started Multiple Myeloma treatment late 2018, and in remission since early 2019. You would think I should be relieved and able to...reactions6comments
Surviving CML: Diagnosis, Advocacy, and Triumph over Health System Challenges...Next month will be a year since my diagnosis of CML. It was found accidentally, which was shocking since I had no...reactions3comments
MDS Diagnosis Journey...After a couple of years with dropping platelet counts and unexplainable fatigue, I was diagnosed in September 2023 with MDS. I don't...reactions5comments
Hope Through Treatment for CML...I was diagnosed with CML in 2014. I was devastated, as I had already been fighting MS. By the grace of whatever...reactions1comment
Being Proactive About Your Health...Sickness happens. We come in contact with another sick person and catch whatever they have. We usually know kind of quickly that...reactions3comments
New Year New Consultation...Happy New Year! Are you ready to do things differently regarding the patient and doctor experience this year? If you could what...reactions2repliesCopingHealthcare TeamTips & Advice
AML with flt-3...If this is your mutation, tell me how you’re doing. How long since diagnosis, what treatments you’ve had, how you’re coping and...reactionsrepliesDiagnosisCoping
How do I start to find answers?...Hi, I'm 65 and have been sick for a very long time but the last few year especially the last year I...reactions13replies
