Now Enrolling-Smartphone Wellness Study for Blood Cancer Patients!...Mays Cancer Center is seeking US-based adult blood cancer patients with poor sleep to participate in a 20-week study to test a digital wellness intervention. Participation involves completing online surveys...reactionsrepliesResearch & Clinical TrialsLeukemiaMultiple Myeloma
CLL Changed My Life...My name is Lynn. I’m 71 and was diagnosed with Chronic Lymphocytic Leukemia (CLL) in May of 2021. I found my life changing slowly over the past few years; not...reactions14comments
Multiple Myeloma and Side Effects: Where Do I Go From Here?...Started Multiple Myeloma treatment late 2018, and in remission since early 2019. You would think I should be relieved and able to resume life as before the diagnosis, but it's...reactions6comments
Surviving CML: Diagnosis, Advocacy, and Triumph over Health System Challenges...Next month will be a year since my diagnosis of CML. It was found accidentally, which was shocking since I had no symptoms and had survived thyroid cancer not once...reactions3comments
MDS Diagnosis Journey...After a couple of years with dropping platelet counts and unexplainable fatigue, I was diagnosed in September 2023 with MDS. I don't know what to expect. I've been pretty even...reactions5comments
Hope Through Treatment for CML...I was diagnosed with CML in 2014. I was devastated, as I had already been fighting MS. By the grace of whatever higher power you believe in, I stumbled into...reactions1comment
Being Proactive About Your Health...Sickness happens. We come in contact with another sick person and catch whatever they have. We usually know kind of quickly that we are coming down with something because of...reactions3comments
New Year New Consultation...Happy New Year! Are you ready to do things differently regarding the patient and doctor experience this year? If you could what changes in communication would you like to correct...reactions2repliesCopingHealthcare TeamTips & Advice
AML with flt-3...If this is your mutation, tell me how you’re doing. How long since diagnosis, what treatments you’ve had, how you’re coping and what symptoms you do you deal with now?...reactionsrepliesDiagnosisCoping
How do I start to find answers?...Hi, I'm 65 and have been sick for a very long time but the last few year especially the last year I started really going down hill with fatigue, brain...reactions13replies
Healthy, clean eating ...Healthy eating…plant based, vegan, organic everything. Eat your blood type. You can google your blood type and it will tell you what foods are healthy for you to eat and...reactions5repliesTips & AdviceDiet & NutritionAwareness
Blood Cancer Superstitions...My wife used to come to all of my oncologist appointments with me. When I was in active treatment for follicular lymphoma, it was very helpful to have another set...reactionscomments
How is everyone doing going into this hectic holiday season? ...Remember to take time for rest and to look after yourself. Our immune systems take a beating. Currently down and out with flu but hopefully will recover in time to...reactions6repliesTips & Advice
2023 Holiday Survival Guide...There's been a lot of discussion lately about cancer and the effects it has on family and the people close, and, well, there is no time of year like the...reactions6comments
Access to clinical trials from oversea...Hi everyone, I have a question re clinical trials. My mom is 59 y.o. with MLL-r AML. She is now 15 months after allo-HSCT and had molecular relapse (dPCR positive)...reactions6repliesResearch & Clinical TrialsTreatmentLeukemia
Wins and Interruptions...You never know... sometimes it flows the way it's supposed to and other times, there are a few hiccups between the stops. What was 1 win towards your health in...reactions5repliesDiagnosisTips & AdviceCoping
Gratefulness - Mic Drop Moment...I was speaking with an acquaintance the other day about my multiple myeloma. The conversation turned to my remission of over five years. It then moved to improvements in treatments...reactions8comments
Out of the Darkness...The initial response to the diagnosis of blood cancer can be overwhelming. I remember feeling in denial. This could not be happening. I never had any symptoms. Anger followed. I...reactions2comments
Finding My People...I attended a couple of cancer events recently. First was the Leukemia and Lymphoma Society’s Light the Night. The second was a cancer storytelling performance called Cancer Chronicles put on...reactions1comment
My Back Is Back...Honestly, I’m unsure where I left things off regarding writing about my back. To summarize, I’ve been dealing with a bad back for a couple of years, along with my...reactionscomments
