RelapseHave you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...Reactions 0 reactions Comments7 repliesCopingTreatmentDiagnosis
Treatment WonderHow often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions 0 reactions Comments3 repliesCopingResearch & Clinical TrialsTreatment
Your Fitness Go-To...Hope the year is starting well for you. Many people hop on the exercise bandwagon in the first part of the year. What is your favorite exercise? For me, I...Reactions 0 reactions Comments6 repliesCopingExerciseTips & Advice
I have Essential Thrombocythemia.I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of people with ET get PH. Has anyone else...Reactions 0 reactions Comments2 repliesDiagnosis
Will you take our In America survey and help others understand the impact of blood cancer?The In America survey is now closed. We are conducting our In America survey to learn more about the challenges of living with blood cancer. By taking our survey, you...Reactions 0 reactions Comments0 replies
Chemo med changeMy platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I just changed to a new pharmacy this year...Reactions 0 reactions Comments2 repliesTreatmentAwareness
How do I start to find answers?Hi, I'm 65 and have been sick for a very long time but the last few year especially the last year I started really going down hill with fatigue, brain...Reactions 0 reactions Comments13 replies
New Year New ConsultationHappy New Year! Are you ready to do things differently regarding the patient and doctor experience this year? If you could what changes in communication would you like to correct...Reactions 0 reactions Comments2 repliesCopingHealthcare TeamTips & Advice
FeaturedLiving with Multiple Myeloma Welcome to our Multiple Myeloma Community Forum – a Safe Haven for Sharing, Learning, and Connecting. Whether you're a patient, caregiver, or simply seeking information, join us to discuss experiences...Reactions 0 reactions Comments22 repliesAwarenessMultiple MyelomaNewly Diagnosed
How is everyone doing going into this hectic holiday season? Remember to take time for rest and to look after yourself. Our immune systems take a beating. Currently down and out with flu but hopefully will recover in time to...Reactions 0 reactions Comments4 repliesTips & Advice