Living with my Star Trek Illness: Understanding Myelodysplastic Syndromes...June 2, 2017, I learned that I have myelodysplastic syndromes (MDS). Doesn't that sound like something written for a Star Trek episode?...reactions19comments
FDA Makes Way for Experimental Drugs to Fight COVID-19...On March 19, the U.S. Food and Drug Administration (FDA) approved the testing of two drugs, chloroquine (hydroxychloroquine) and remdesivir, to treat...reactions1comment
Battle Fatigue: Deciding When to Stop Fighting...Not every cancer patient sees themselves as a warrior, fighting a battle against their cancer. They say they are merely trying to...reactions8comments
My Experience During Chemotherapy...The experience of a cancer diagnosis can be overwhelming. Initially, my oncologist recommended a “watch and wait” approach as this was the...reactions4comments
An Accidental Author...One of my favorite quotes is “life happens to us when we’re busy making plans” by Allen Saunders. Life has a way of surprising...reactions5comments
What Other Tests are Used to Diagnose Blood Cancer?...In addition to blood tests and bone marrow aspiration, there are several tests that are commonly run to analyze the blood and...
Nine Ways to Reduce Stress...It’s important to reduce stress in our lives. We don’t have the health, the strength, or the time for a stressful life...reactions9comments
Battling with Life...I get angry with the language around cancer and have written about it. I’m not fighting or winning or losing or battling...reactions2comments
Taking Action...In my family, three people have gotten cancer. First, it was my mother. For her, it started with cervical cancer which was...reactions7comments
The Joy of the Cancer Nerd...I have a confession to make: I’m a big nerd. Specifically, I’m a big cancer nerd. I could go by other names...reactions6comments
Not Your Fault...I recently read a post by one of our members. It seems her family, and in particular, her parents implied that it...reactions4comments
Staying Positive, Being Honest...As I think back upon all the things people have said to me since my diagnosis, ‘Stay positive!’ is one of the...reactions8comments
Chemo Brain is Real...When it comes to long term side effects, one of the most prominent term I hear the most is chemo brain. After...reactions3comments
'Alphabet Soup': Explaining ECP for GVHD of the Skin (Part 1)...When I tell people that I had four stem cell transplants, I have to start with the basics if they don’t know...reactions3comments
Improved Tennis Game: Unexpected Benefit of Light Therapy for Skin (Part 2)...There was good news and bad news when they went from using one arm to two in the procedure called ECP, or...reactions3comments
The Cancer Tornado...Saturday, April 24. 1993, Catoosa, Oklahoma, was hit by a deadly tornado. Catoosa is my second hometown. I started teaching for Catoosa...reactions7comments
How to Monitor Your Health with At-Home Devices...At-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this...reactionscomments
Privacy Concerns When Going Virtual...Telehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show...reactions1comment
The Biopsy Experience for Blood Cancer Diagnosis...Depending on a patient’s symptoms or abnormal lab values, the physician may consider a biopsy in order to examine the cells and...reactions4comments
Take the Fatigue and Health Survey!...The 2020 Fatigue and Health survey has now closed. Thank you for your interest! We are excited to share the results with...reactions3comments
