I Rarely Get Ill... Strange for a Cancer Patient...I’ve been thinking about this recently as loads of people I know have had colds or the flu. One tried to take over, but I got rid of it by...reactions3comments
Surviving a Radio Interview After Surviving Leukemia...Seeing Larry Lucchino, chairman of The Jimmy Fund, at a recent conference on cancer survivorship, reminded me of the time I was a nervous wreck when I was on the...reactions2comments
Hair Today Gone Tomorrow...Am I going to lose my hair? This is usually one of the first questions when someone finds out they will have to undergo chemo, regardless of the type of cancer...reactions2comments
Not Lucky to Get Lymphoma, but Lucky to Get It When He Did...It was 1995, and by his own admission, Larry Lucchino, currently president and CEO Emeritus of the Boston Red Sox, was “cocky, full of myself.” At age 40, he had...reactions2comments
Feeling a Little Paranoid...Being paranoid becomes a part of life after cancer. I find myself spiraling with concern over the smallest things. I no longer worry over the little things in day to...reactions6comments
Can anyone share helpful resources for finding financial assistance?...Many people in our community are searching for financial assistance with their medical bills. @cmccue wrote a great article that includes several resources. Does anyone have other helpful resources to...reactions17repliesCost
Feeling Old Way Before My Time...I was diagnosed with stage 3 lymphoma back in November of 2010 at the age of 29 years old. I sort of breezed through ABVD and radiation all while planning...reactions15comments
Amyloidosis and Smoldering Myeloma...Mine is not a blood cancer, per se, but it’s generated in the same place, the bone marrow. Just like multiple myeloma. It is currently treated with 120 mg, monthly...reactions1comment
Scars as a Road Map of Where We've Been...When most people hear the name Scott Hamilton, ice skating glory comes to mind. But the Olympic gold medalist is also a cancer survivor. And it sounds like he approached...reactions3comments
Preparing for and Embracing the New Normal...When I was diagnosed, I could NOT wait to be considered a survivor. I was absolutely set on that word and had a countdown until my last chemo was complete...reactions3comments
BC vs. AD...Human history is chronicled by days, months and years. And going back in time, there is a dividing line from which our calendars today are based. That line, that event...reactions10comments
What Friends Should Know About My MDS Journey...I was diagnosed with myelodysplastic syndrome (MDS) in 2017. Yes, it's a real thing. I've always thought it sounded like something from Star Trek, maybe something Mr. Spock would acquire...reactions8comments
Triggers...As I write this post, I’m challenged as I think about the recent, devastating passing of all-time sports hero, Kobe Bryant. The news that pulsated every television channel last Sunday...reactions10comments
Questions You May Have Before Chemotherapy...A blood cancer diagnosis is a frightening event in so many ways. The thought of needing chemotherapy or any treatment can be overwhelming. Knowledge can be powerful and help provide...reactions2comments
Clueless...As most anyone born during the period spanning the mid-to-late 1960s to the early ‘80s will undoubtedly recall, there was a well-known board game from that era by the name...reactions11comments
Sharing Your Diagnosis with Loved Ones...I found it really difficult to share information with friends and family about what I was dealing with before and even during my diagnosis. My mom and I sat down...reactions4comments
Cancer Made Me Break Up With Food...Man, I loved to eat. I mean, who doesn’t right? I really enjoyed food itself, though – the taste, texture and look. I loved to explore the flavor of everything...reactions6comments
FeaturedHas anyone had any cognitive or speech issues after chemotherapy?...I was diagnosed with NHL in 2016, at the age of 45. Although the type of NHL was not unusual (DLBCL), the way it manifested as cholangiocarcinoma and in the...reactions20repliesLymphomaSide Effects
What Are Your Top Standards in Care?...My top standards in my care would have to be: Competent oncology teamEasy insurance process to seek better care What are yours?...reactions2repliesHealthcare Team
Playing the Waiting Game...I’m having a weepy Wednesday and it’s only Monday. Let me explain. I was never much of a crier. I think a lot of that came from being a round...reactions10comments