Living Alone with Blood Cancer...Let’s see 79 years, 7 months, and 11 days ago as of this writing at exactly 12:45 PM on a bright sunny...reactions14comments
The Importance of “Things to Look Forward To”...A blood cancer survivor may experience a wide range of emotions. I experienced many emotions this past year intensified as a cancer...reactions9comments
How Roger Federer Helped me Get Through Chemo...When I told my kids how sad I was about Roger Federer’s retirement this September, at age 41, my son pointed out...reactions4comments
Hairy Cell Leukemia...Hi All! Has anyone gone through treatment for hairy cell leukemia?...reactions4repliesDiagnosisLeukemia
Truth Teller...How comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care?...reactions6repliesDiagnosisTreatmentHealthcare Team
Dissociation...Google defines the word dissociation as, “The disconnection or separation of something from something else or the state of being disconnected.” It’s...reactions20comments
Ms. Jackie May...My mom died in 1998. Two of my uncles from my mom's side died 6 months apart from one another. My brother...reactions3repliesCoping
3 Blood Diseases (Cancer)...I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda...reactions8repliesDiagnosis
Some Things I Can No Longer Do...I didn’t think of it as an excuse, it’s my new reality. I’m grateful for 10yrs in remission of Stage 4 Hodgkin...reactions1comment
Transplant games...Has anyone ever heard of the transplant games? I’ve always wanted to go. They have things such as track and field bowling...reactions2repliesAwarenessExercise
Food, Nutrition, and Health...During today’s video, I had a conversation with Niamh Gourlay. She holds a master’s degree from the University of Dublin in the...reactions20comments
Surviving and Thriving Because You Don't Look Sick...I recently read Surviving and Thriving with an Invisible Chronic Illness by Ilana Jacqueline. The author is a young woman who has suffered...reactions25comments
Why patients need to be their top advocates...As the year ends, I reflect back on what has been a tough time medically for me—and not just because of my...reactions16comments
Menopause and 25 years old!...When you think of menopause as a young woman; you would usually think of an older woman. A woman who has had...reactions10comments
Cinderalla Effect...Having both CLL and NHL my wife has named the "Chemo fog" effect to Cinderella effect. Sometimes in the afternoon, I get...reactions9comments
CLL mutation TP53 ...I can not find anyone who has experienced this!! Either firsthand or family/ friend. I know it's not good ,poor prognosis, etc...reactions5repliesDiagnosis
My Diagnosis and Living with Polycythemia Vera...I’m Nathan, I'm 47 years of age, and I was diagnosed with polycythemia vera in 2020, 2 years ago. I live in...reactions7comments
Using My Cancer Card...Okay, I admit it, I’ve used my cancer card. For those not familiar with the term, it means using a cancer diagnosis...reactions22comments
Chemo-Savvy: A CML Patient's Top 5 Caregiver Tips...I’ve been a leukemia patient since 2011 and it isn’t always easy to navigate this disease. It can be painful, disturbing, and...reactions14comments
Cancer Is A Disease of Feelings...All the feels. Cancer, and especially blood cancer, is so dependent on feelings that I wouldn’t be surprised to see it sitting...reactions26comments
