Living with Myelofibrosis...I was diagnosed with Jak-2 ET in August 2016. I was told that I was high risk and had to start chemotherapy medication immediately. I was told that I had...Reactions0reactionsComments3 comments
The Gift of Self Care...It’s a conundrum. When it comes to a chronic blood cancer diagnosis we try to strike a balance between the symptoms of the disease and the side effects of the...Reactions0reactionsComments18 comments
Fatigue Overload and Others...Most people know or learn to realize that fatigue is very much in the equation when diagnosed with blood cancer. It’s a sore topic that many endure, and some are...Reactions0reactionsComments24 comments
Mental Stability: Health Vs Income...We all go through a lot! Before blood cancer the majority of us had so many things that consumed our minds, most of what I could admit for myself was...Reactions0reactionsComments13 comments
Diagnosed with Multiple Myeloma...I was diagnosed with multiple myeloma bone marrow cancer last year in July. I go to chemo twice a week. I'm in remission right now I also suffer from neuropathy...Reactions0reactionsComments4 comments
Not So Smart...Done with the chemo and all the Mg. of pills. I learned I am not Super Man. I have had bouts that far exceed anything I have ever been through...Reactions0reactionsComments1 comments
Is This Real?...At this moment I cannot even think of a title to put down for my story. It’s been such a whirlwind. My story starts off with having Covid in March...Reactions0reactionsComments2 comments
Cold, Flu, Covid-19 -- or Chemo?...Here we are, nearly three years after the start of the pandemic. As far as I know, I have not been infected with Covid-19. I have taken every available vaccine...Reactions0reactionsComments10 comments
Living with Multiple Myeloma...In 2016, started having some health issues. After numerous tests, including a fat pad biopsy, a kidney biopsy, and a bone marrow biopsy I was told I had Multiple Myeloma...Reactions0reactionsComments1 comments
Journey from 2016...The year I was diagnosed with AML. Scared to death. The chemo turned water into rust and the metal smell came out of my skin. Hair loss, vomiting, bowels like...Reactions0reactionsComments0 comments
Life with Blood Cancer: Results of the 2022 Blood Cancer In America Survey...Blood cancer is a general term that encompasses many different kinds of cancer. Blood cancers are cancers that affect the cells in the blood, in the bone marrow, or in...Reactions0reactionsComments3 comments
Living With Blood Cancer as a Chronic, Ever- Present Condition...A blood cancer diagnosis has a ripple effect throughout our lives. It is a start of a long journey that can be draining on the emotional, mental, and physical well-being...Reactions0reactionsComments12 comments
Feeling Different This Year...Well another year has gone by. Another year older. (It was my birthday recently). How the hell has that happened?! And I’ve recently clocked that my mind isn’t as full...Reactions0reactionsComments3 comments
Emotional Support...I have 8 cats and they are such wonderful company for me. I know that they are a lot of work which they are, cleaning out the litter boxes is...Reactions0reactionsComments1 comments
ALL...After the blood test at the ER, I was told I had blasts!! I asked, "What's that?" They said I have leukemia. I was in disbelief. No one in my...Reactions0reactionsComments6 comments
MDS...I was diagnosed 4 yrs ago and just had my first blood transfusion a month ago Now they want to give me shots every two weeks to try and make...Reactions0reactionsComments8 repliesAwareness
Make It a Goal...It's 2023 and it’s going to be a better year. If you’re reading this, you probably have blood cancer. That doesn’t mean you can’t make 2023 fun and exciting. There...Reactions0reactionsComments10 comments
New Resolutions for 2023...What are some changes or improvements that you are fostering for the new year? For me: Calmness and get more toned. Cheers!...Reactions0reactionsComments18 repliesTips & AdviceCoping
You Are What You Eat...Warning … the above is not some cute slogan. And if you have experienced a blood cancer journey or any cancer journey, I suggest the above “slogan” is an important message...Reactions0reactionsComments18 comments
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
