The Importance of “Things to Look Forward To”...A blood cancer survivor may experience a wide range of emotions. I experienced many emotions this past year intensified as a cancer survivor dealing with my husband’s cancer diagnosis, surgery...reactions9comments
How Roger Federer Helped me Get Through Chemo...When I told my kids how sad I was about Roger Federer’s retirement this September, at age 41, my son pointed out that the tennis star hadn’t been actively competing...reactions4comments
Hairy Cell Leukemia...Hi All! Has anyone gone through treatment for hairy cell leukemia?...reactions4repliesDiagnosisLeukemia
Truth Teller...How comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care? Do you think they leave room to exaggerate...reactions6repliesDiagnosisTreatmentHealthcare Team
Dissociation...Google defines the word dissociation as, “The disconnection or separation of something from something else or the state of being disconnected.” It’s no wonder that we as cancer patients and...reactions20comments
Ms. Jackie May...My mom died in 1998. Two of my uncles from my mom's side died 6 months apart from one another. My brother died in 2022 and my brother I live...reactions3repliesCoping
3 Blood Diseases (Cancer)...I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda Maryland. Ohio State University James Cancer doesn’t know...reactions8repliesDiagnosis
Some Things I Can No Longer Do...I didn’t think of it as an excuse, it’s my new reality. I’m grateful for 10yrs in remission of Stage 4 Hodgkin Lymphoma. There are just some things I can...reactions1comment
Transplant games...Has anyone ever heard of the transplant games? I’ve always wanted to go. They have things such as track and field bowling 5K there’s a lot to pick from!...reactions2repliesAwarenessExercise
Food, Nutrition, and Health...During today’s video, I had a conversation with Niamh Gourlay. She holds a master’s degree from the University of Dublin in the field of food, nutrition, and health. She became...reactions20comments
Surviving and Thriving Because You Don't Look Sick...I recently read Surviving and Thriving with an Invisible Chronic Illness by Ilana Jacqueline. The author is a young woman who has suffered from several illnesses. I was diagnosed with myelodysplastic...reactions25comments
Why patients need to be their top advocates...As the year ends, I reflect back on what has been a tough time medically for me—and not just because of my chronic myeloid leukemia diagnosis. It has been eight...reactions16comments
Menopause and 25 years old!...When you think of menopause as a young woman; you would usually think of an older woman. A woman who has had all her children and embracing being a glam...reactions10comments
Cinderalla Effect...Having both CLL and NHL my wife has named the "Chemo fog" effect to Cinderella effect. Sometimes in the afternoon, I get really foggy. Yesterday we were shopping for groceries...reactions9comments
CLL mutation TP53 ...I can not find anyone who has experienced this!! Either firsthand or family/ friend. I know it's not good ,poor prognosis, etc. I was diagnosed in November. If you have...reactions5repliesDiagnosis
My Diagnosis and Living with Polycythemia Vera...I’m Nathan, I'm 47 years of age, and I was diagnosed with polycythemia vera in 2020, 2 years ago. I live in Sydney, Australia. I was in my prime in...reactions7comments
Using My Cancer Card...Okay, I admit it, I’ve used my cancer card. For those not familiar with the term, it means using a cancer diagnosis as an excuse to get out of something...reactions22comments
Chemo-Savvy: A CML Patient's Top 5 Caregiver Tips...I’ve been a leukemia patient since 2011 and it isn’t always easy to navigate this disease. It can be painful, disturbing, and confusing even on my best days. I think...reactions14comments
Cancer Is A Disease of Feelings...All the feels. Cancer, and especially blood cancer, is so dependent on feelings that I wouldn’t be surprised to see it sitting on the couch with a pint of ice...reactions26comments
If You Could......If you could where would you want your treatment care to take place? *Another Country *On a Beach *Clean & Sterile & everything in White *Stay Where I'm At Though...reactions25repliesCopingMultiple MyelomaTreatment