Why patients need to be their top advocates...As the year ends, I reflect back on what has been a tough time medically for me—and not just because of my chronic myeloid leukemia diagnosis. It has been eight...reactions16comments
Menopause and 25 years old!...When you think of menopause as a young woman; you would usually think of an older woman. A woman who has had all her children and embracing being a glam...reactions10comments
Cinderalla Effect...Having both CLL and NHL my wife has named the "Chemo fog" effect to Cinderella effect. Sometimes in the afternoon, I get really foggy. Yesterday we were shopping for groceries...reactions9comments
CLL mutation TP53 ...I can not find anyone who has experienced this!! Either firsthand or family/ friend. I know it's not good ,poor prognosis, etc. I was diagnosed in November. If you have...reactions5repliesDiagnosis
My Diagnosis and Living with Polycythemia Vera...I’m Nathan, I'm 47 years of age, and I was diagnosed with polycythemia vera in 2020, 2 years ago. I live in Sydney, Australia. I was in my prime in...reactions7comments
Using My Cancer Card...Okay, I admit it, I’ve used my cancer card. For those not familiar with the term, it means using a cancer diagnosis as an excuse to get out of something...reactions22comments
Chemo-Savvy: A CML Patient's Top 5 Caregiver Tips...I’ve been a leukemia patient since 2011 and it isn’t always easy to navigate this disease. It can be painful, disturbing, and confusing even on my best days. I think...reactions14comments
Cancer Is A Disease of Feelings...All the feels. Cancer, and especially blood cancer, is so dependent on feelings that I wouldn’t be surprised to see it sitting on the couch with a pint of ice...reactions26comments
If You Could......If you could where would you want your treatment care to take place? *Another Country *On a Beach *Clean & Sterile & everything in White *Stay Where I'm At Though...reactions25repliesCopingMultiple MyelomaTreatment
Life during Chemo...Too exhausting, too toxic. I wished at 85 yrs old my Auntie chose No Chemo Tx and went on Vacation! She was too old…Not sure her Drs guided her the...reactions2replies
The Things We Remember...We just finished up a bathroom remodel at our house. What a pain. During the work, we discovered that some needed plumbing work that we had done in the spring...reactions14comments
What A Year It Has Been...2022. A huge year for me in many ways. My first full year of not living in London since I moved there in 2009. My first calendar year off chemo...reactions2comments
Reading Someone's Memoir About My Blood Cancer...What would I, a retired teacher from Oklahoma, possibly have in common with well-known authors and screenplay writers Nora and Delia Ephron? Blood cancer? Left on Tenth, A Second Chance...reactionscomments
My Experience Being Diagnosed With Blood Cancer...A fellow cancer survivor recently asked me about my cancer experience. She discussed her initial symptoms and was surprised that I had none. My diagnosis was an incidental finding. While...reactions4comments
Neuropathy - A Side Effect of Blood Cancer Treatment...Adopting a graceful attitude, when living with blood cancer like non-Hodgkin lymphoma is a way I am trying to peacefully deal with the many things the disease and the treatments...reactions11comments
About Me...Diagnosed with non-hodgkin's lymphoma back in 2003. The first treatment was in 2005. I've had 4 maybe 5 treatments in all. I recently had another CT scan and I have...reactions17comments
Tips for Intentional Decision-making...As 2023 rolls in as a new year to a fresh start; it may feel like there are remnants of 2022 or the past attached. You may wonder how you...reactions8comments
Anacrusis: Picking Oneself Up After A Bad Time...Today I cried in front of my chiropractor. It’s true and I’m only a little bit embarrassed. The past few days I’ve been in a lot of pain because of...reactions20comments
Covid risk and trade offs for blood cancer patients...I haven’t heard much talk in the cancer community about how Covid has made the lives of people with cancer and their families so much more difficult. My husband has...reactions19repliesLymphoma
American Cancer Society Resources...Getting to speak with someone from the American Cancer Society (ACS) is pretty exciting and today I got to do just that. Ampy Rougeau is the Managing Director for the...reactionscomments
