Glenis Redmond...I was diagnosed as stage 3 Multiple Myeloma in July 2019. I had a Stem Cell Transplant in the Winter of 2020. I’m now non-detectable on maintenance chemotherapy. I recently...
Outlets...What are your outlets to maintain balance in life? diagnosis, treatment, job, bills… you know how all that goes....reactions6repliesCopingAwarenessExercise
Nutrition and Blood Cancer...As someone living with a rare, chronic leukemia (diagnosed in 2007 with hairy cell leukemia), I have always had the question of how did I get it in the first...reactions21comments
Sky high Platelets and Ferritin with MDS...Hi there, I was diagnosed with MDS two years ago. Yesterday my bloodwork showed very high Platelets (1,070) and Ferritin (400). My Doctor is confused and said I'm a "puzzle"...reactions11repliesDiagnosis
Polycythemia...I kept going to the doctor's office and complaining of a headache, fatigue, itching, and just general malaise. The PA would have me go to the lab and say there...reactionscomments
Living Alone with Blood Cancer...Let’s see 79 years, 7 months, and 11 days ago as of this writing at exactly 12:45 PM on a bright sunny summer day I arrived alone on this planet...reactions14comments
The Importance of “Things to Look Forward To”...A blood cancer survivor may experience a wide range of emotions. I experienced many emotions this past year intensified as a cancer survivor dealing with my husband’s cancer diagnosis, surgery...reactions9comments
How Roger Federer Helped me Get Through Chemo...When I told my kids how sad I was about Roger Federer’s retirement this September, at age 41, my son pointed out that the tennis star hadn’t been actively competing...reactions4comments
Hairy Cell Leukemia...Hi All! Has anyone gone through treatment for hairy cell leukemia?...reactions4repliesDiagnosisLeukemia
Truth Teller...How comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care? Do you think they leave room to exaggerate...reactions6repliesDiagnosisTreatmentHealthcare Team
Dissociation...Google defines the word dissociation as, “The disconnection or separation of something from something else or the state of being disconnected.” It’s no wonder that we as cancer patients and...reactions20comments
Ms. Jackie May...My mom died in 1998. Two of my uncles from my mom's side died 6 months apart from one another. My brother died in 2022 and my brother I live...reactions3repliesCoping
3 Blood Diseases (Cancer)...I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda Maryland. Ohio State University James Cancer doesn’t know...reactions8repliesDiagnosis
Some Things I Can No Longer Do...I didn’t think of it as an excuse, it’s my new reality. I’m grateful for 10yrs in remission of Stage 4 Hodgkin Lymphoma. There are just some things I can...reactions1comment
Transplant games...Has anyone ever heard of the transplant games? I’ve always wanted to go. They have things such as track and field bowling 5K there’s a lot to pick from!...reactions2repliesExerciseAwareness
Food, Nutrition, and Health...During today’s video, I had a conversation with Niamh Gourlay. She holds a master’s degree from the University of Dublin in the field of food, nutrition, and health. She became...reactions20comments
Surviving and Thriving Because You Don't Look Sick...I recently read Surviving and Thriving with an Invisible Chronic Illness by Ilana Jacqueline. The author is a young woman who has suffered from several illnesses. I was diagnosed with myelodysplastic...reactions25comments
Why patients need to be their top advocates...As the year ends, I reflect back on what has been a tough time medically for me—and not just because of my chronic myeloid leukemia diagnosis. It has been eight...reactions16comments
Menopause and 25 years old!...When you think of menopause as a young woman; you would usually think of an older woman. A woman who has had all her children and embracing being a glam...reactions10comments
Cinderalla Effect...Having both CLL and NHL my wife has named the "Chemo fog" effect to Cinderella effect. Sometimes in the afternoon, I get really foggy. Yesterday we were shopping for groceries...reactions9comments